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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Moyamoya Disease

Hi my daughter of 15 was diagnosed with Moya moya disease. We are living in Italy and after many tests, hospitalization etc. we are now aware of the results of her initial symptoms at the age of 9. They told us in Italy there are no neurosurgeons who have already operated patients affected by this rare disease. We would like our daughter to be operated in Boston but it s expensive for us. Can you let us know if there is a surgeon in Italy or in Europe who does this surgery and he is an expert? thank you very much in advance.
Wed, 6 Apr 2016
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Physical Therapist or Physiotherapist 's  Response
hi,

thank you for the brief history of your daughter.

as you mentioned she has a moyamoya disease I will recommend from my side to some breathing exercises. As perfroming breathing exercises will help induce more oxygen carring to the brain tissue. Breathing exercises will help your daughter for symptomatic relief as of now. Mean time without knowing what symptoms she is facing it is hard to say how to help her more. But as you said you are looking for a Surgeon in Europe or italy I don't know one. Still as I know there is a neurologist whose cases I have seen doing wonders is Dr. Ragahavendra , Vikram Hospitals, Bangalore, India. You can consult him as well.

Regards
Jay Indravadan Patel
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Suggest Treatment For Moyamoya Disease

hi, thank you for the brief history of your daughter. as you mentioned she has a moyamoya disease I will recommend from my side to some breathing exercises. As perfroming breathing exercises will help induce more oxygen carring to the brain tissue. Breathing exercises will help your daughter for symptomatic relief as of now. Mean time without knowing what symptoms she is facing it is hard to say how to help her more. But as you said you are looking for a Surgeon in Europe or italy I don t know one. Still as I know there is a neurologist whose cases I have seen doing wonders is Dr. Ragahavendra , Vikram Hospitals, Bangalore, India. You can consult him as well. Regards Jay Indravadan Patel