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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Acute Macular Neuroretinitis

My daughter is 27 yrs. old and was diagnosed in the middle of March with acute macular neuroretinitis. Of course, we are devastated because it has affected her central vision enough to keep her from driving and she has been unable to return to work; she is a fire fighter, going on 5 years now and of course with this disease/condition has also been told that there is nothing that can be done short of a natural miracle to bring back her diminished eyesight which has not gotten any better. Her retina specialist, who I am sure is a great doctor, only has 1 other patient, since the condition is so rare and I think by now barring the fact that I am not an eye specialist myself, I have done more research on the disease than he has. I think that I actually have read just about every word that is on the internet that has been written about it already. Hers is a classic case; she has been on birth control pills for 9 years and just about that same amount of different kinds because of problems taking them, so that is a mitigating factor, but the only one that sticks out that is always mentioned. The only other thing that sticks out in my mind that should be a red flag in her case, I feel, is the fact that she has had severe migraine headaches since she was 2 yrs. old and out of all those other woman, not one with this condition has every been mentioned as that having been a factor in their losing their sight....but when I finally got mad enough and put the relation of the two things into a search engine, it let me to this sight!! Here s the irony of her story though, after 1 month of 5 days in a row of migraines, having an angiogram to make sure there was no blockages in the back of her head where her migraines always concentrated, (came out clear) went to a brand new Neurologist who prescribed the wrong medicine that she was told that my daughter could NOT take because she has bad reactions to it the 3 times she took it, she prescribed it anyway (under a different name) wouldn t you think a doctor would know better??? My daughter got violently ill again after taking it with a migraine on 3/14, suffered through it, then the next day on 3/15, got very sick again with something that resembled the worst stomach virus she has ever had, which could have been another side effect (we read them all), and the very next morning on 3/16 woke up with her central vision impaired. Now, we go back to her retina specialist next Friday for her 1 month specialist, but nothing has changed at all - but her entire life. Can you help us? As her parents, we feel like we are not doing enough for her, but wow, when you hit a brick wall like this with your child that s one day so healthy and just starting their life and doing so well and then something like this happens....the hardest thing is, there are just NO ANSWERS and no one seems like they want to even talk to us or help! Oh, and the absolutely weirdest thing that DID happen is, that since the very day she became visually impaired, she has NOT had even one migraine headache!!! NOT ONE!! By now, under all the stress and crying and craziness we have been through around here, she would have had several already....this case at least warrants a Case Study....if nothing else!! I at least am thanking God for that and praying for the larger miracle everyday. Please let me hear from you soon. Thanks!
Wed, 23 Apr 2014
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Ophthalmologist 's  Response
Unfortunately there is little progress in this field. Systemic steroid is recommended but it has lot of side effect. One good thing is in macular degeneration will not go totally blind. There is report that cataract surgery lens implant improves the vision. Low visual aid is the ultimate answer.
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Suggest Treatment For Acute Macular Neuroretinitis

Unfortunately there is little progress in this field. Systemic steroid is recommended but it has lot of side effect. One good thing is in macular degeneration will not go totally blind. There is report that cataract surgery lens implant improves the vision. Low visual aid is the ultimate answer.