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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Robinow Syndrome

Looking for a ENT Dr. for recommendations for my granddaughter, with Robinow syndrome. She does not have a cleft palate but her ENT does not want to remove her tonsils (cyst in one) because or her high palate. She does not have a speech impediment (tested at UTMB) but Dr. says it may impair her speech. She is 26. What do you suggest? I am her Grandmother and she lives with me. I just got her UHC medical Insurance. She thinks the food moves around in her throat and is painful. She has had food stuck in her tonsil before and managed to remove it.
Mon, 22 Jun 2015
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Physical Therapist or Physiotherapist 's  Response
Robinow Syndrome Treatment
There are various treatment options that help to keep the symptoms under control and to prevent some associated health problems. However, it is not possible to cure the condition completely. The treatment varies from one patient to another depending on the present symptoms. Surgical correction of the physical deformities is the most common treatment option. Other treatment measures that can help the patients to cope with the condition include:

Dental therapy
Growth hormone therapy
Counseling
The spine defects and facial deformities are often corrected by appropriate surgery. Children with micropenis should be treated with human chorionic testosterone and gonadotrophin hormone therapy. The patients should receive regular counseling so that they can overcome the physical defects to participate in social activities.
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Suggest Treatment For Robinow Syndrome

Robinow Syndrome Treatment There are various treatment options that help to keep the symptoms under control and to prevent some associated health problems. However, it is not possible to cure the condition completely. The treatment varies from one patient to another depending on the present symptoms. Surgical correction of the physical deformities is the most common treatment option. Other treatment measures that can help the patients to cope with the condition include: Dental therapy Growth hormone therapy Counseling The spine defects and facial deformities are often corrected by appropriate surgery. Children with micropenis should be treated with human chorionic testosterone and gonadotrophin hormone therapy. The patients should receive regular counseling so that they can overcome the physical defects to participate in social activities.