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Suggest Treatment For ALD
Dear doctors ... what would be your advice for a 6 years old boy with ALD? Would you recommend a bone marrow transplantation (BMT) ? What kind of diet should be given to that boy? Considering the weak condition of the boy, would you let him to have a blood test monthly (6 bottles of 15cc blood) ? Thanks in advance.
Wed, 25 Jan 2017
Dear parent, I understand your concerns but currently there are 2lines of treatment 1) Lorenzo oil this is not a defentive treatment it only tend to improve the symptoms in mildly affected children
2) stem cell transplantation , this is a defenetive treatment that is recommended for young children who has the disease , it can be done using umbilical cord blood or bone marrow. the new bone marrow will have a functioning ALD protein. I recommend the transplant. also no problem in doing the tests if necessary . he should avoid fatty foods
2) stem cell transplantation , this is a defenetive treatment that is recommended for young children who has the disease , it can be done using umbilical cord blood or bone marrow. the new bone marrow will have a functioning ALD protein. I recommend the transplant. also no problem in doing the tests if necessary . he should avoid fatty foods
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