The lymph nodes under my jawbone have been more than doubled in size for several months. I've had a CT scan, MRI's, etc. I was sent to have biopsy- radiologist wouldn't do it (I have primary autonomic dysfunction, Ehlers-Danlos, and an anomalous left main coronary artery). Dad died of amyloidosis. Rheumatologists say I definitely have auto immune stuff going on- just don't know what. My skin on my trunk and legs is mottled. Now the last 2-3 months my tongue is swollen and looks scalloped on the edges and my fingers are swelling at night and are red and hot. I have Raynauds and have "vascular events", also have carpal tunnel. I had a rectal biopsy that was fine. My nose also swells up at night and turns bright red. When I had tilt table (without med) I had NO b..p., no oxygen level for 3 minutes and when they could detect my heart rate it was 2 beats per minute. HELP!