I have read your query,& understood your concern.The thing I appriciate most is ,you love life too much! Yes, though Lupus is difficult to manage,
this + ve attitude will definately lead to a bearable life !
Apart form the routine imuno suppressive drugs,few newer things can offer relief to the pain & the skin rashyou have. Please consult your treating Doctor & for the use & doses of the medicines.
-Disease modifying anti rheumatic drugs - can reduce the pain
- Analgesia with opioids
Life style changes-
- Avoid exposure to sunlight, & occupational exposure to
- have easily digestible,nutritive food with fruits,salads,vegetables-that
-- Drinking lot of water & liquids
-Have regular walk in evening.Light exercises for all the joint
- Respiratory exercises,mind concentration, meditation
,positive self talk has a definite effect in controlling the disease process.
Wishing you the best,thank you.
All these things will enhance general well being & protect kidney
,heart,joints , avoiding further problems.
meditation . A +ve self talk does help .