Hi there ~
Please consult a homeopathic
doctor for your condition if you have not had adequate help from an allopathic doctor. I think your genetic condition is treatable symptomatically, however if you have lost hope from allopathic doctors, I would like for you to be seen by a doctor you trust. Sometimes, it has a lot of effect on the response to treatment.
I hope this helped. Take care and have a nice day !