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Neurofibromatosis type one, back, neck pain, tingling, high pulse rate. Treatment?

I am a 23yr old female i have neurofibromatosis type 1 and have had a lot of pain in back of meck down to middle of my back. Both my upper and lower extremeties have been getting discolored and i have had painful tingling as well. My blood pressure has stayed between 112/88 and 126/93 but my heart rate has been between 115&130 should i see a doctor? Im not on any meds
Asked On : Mon, 10 Sep 2012
Answers:  2 Views:  181
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Neurologist 's  Response
Dear Kgriffith07
Neurofibromatosis predispose to formation of neurofibromas and discolouration of the skin. Please get yourself evaluated by a physician and you may have to get MRI Spine done to evaluate the cause of your neck and back pain which my be due to Neurofibromas. Skin changes are part of spectrum of the disease but they need to seen by a dermatologist before we blame NF for the same.
Answered: Tue, 11 Sep 2012
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Neurologist Dr. Piyush Ostwal's  Response
A patient with neurofibromatosis may develop neurofobroms at multiple sites in the body. Back and neck are also known sites of development of neurofibroma. The pain and tingling may be related to neurofibroma. Your heart rate is definitely on higher side however it does not seeem to be related to neurofibromatosis. You need to visit a neurologist for evaluation of backpain. He may advice scan of the back and neck.
Good luck.
Answered: Tue, 11 Sep 2012
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