I can see you have been extensively investigated and on reviewing your symptoms and the test results I would be interested to know whether hypokalemic periodic paralysis
has been considered as a diagnosis.
This is a rare inherited condition characterised by low potassium levels and intermittent muscle weakness
. Weakness may be mild and limited to certain muscles or may affect the whole body. Attacks may start in adolescence and may be followed by a prolonged period of investigations as the diagnosis is often difficult to confirm.
Not all of your symptoms fit the picture of this condition but I thought you might consider this worth persuing with your specialist. I have managed a number of patients with hypokalemic periodic paralysis on the ICU so have some experience of the condition.
I hope this is of help.
Dr K A Pottinger,