Thank you for posting your query.
It is clear that surgery is not possible, and this problem can not be completely cured. So, we have to aim for palliative treatment.
A consultation with a Urologist
, specialising in neuro-urology, would be helpful. There are medications and minor procedures that could help your child, with urinary symptoms, and preventing any kidney
Dr Sudhir Kumar MD DM (Neurology)
Senior Consultant Neurologist