EDS is very unpredictable condition
course of the disease is differ from person to person
mainly genetic factor play major role
it involved many system but mainly disease of connective tissue
u have develop photo sensitivity also
u must wear sun glass and it must be like that pt wear after cataract
u should apply drops for dry eye
better to consult eye doctor
u must take care and not allow to it progress as our main priority is to control it and stop its progress.
at last i advise u to be active and do regular physiotherapy
or exercise .