I understand, but you would think after 11 years and all the doctors, tests and medications, not to mention the amount of $$'s spent on this, that someone, somewhere would have diagnosed this by now:(
I agree with the statement on #2 and I did try other anitconvulsants also with the Topomax
, and without, but to no avail! All I got with Topomax was very blurred vision! I think I have had every kind of pill there is to try to treat this, Prilosec
I will look into the parasomnias
and the ESR
CRP tests and hopefully someone will figure this out. I have never come across anyone else who has had or does have this either, so I have nothing to compare notes to. I cannot be the only person in this world that has this issue??