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I have Usher Syndrome, kindly help me

I think that I have Usher Syndrome. Retinitis Pigmentosa has been confirmed and the ear doctor said that I was slowly losing my hearing although the two have yet to be officially linked. I believe I have type 3. I have balance problems which I believe is vertigo . I feel like I am in a dreamlike state a lot of times. It makes it hard feel like I am "with it" and to feel like i'm not being spacey. Could you give me any insight or anything that might help ? I really hate living like this....
Asked On : Mon, 12 Apr 2010
Answers:  2 Views:  290
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  Anonymous's Response

Usher syndrome is the most common condition that affects both hearing and vision. The major symptoms of Usher syndrome are hearing loss and an eye disorder called retinitis pigmentosa, or RP. RP causes night-blindness and a loss of peripheral vision (side vision) through the progressive degeneration of the retina. The retina is a light-sensitive tissue at the back of the eye and is crucial for vision. As RP progresses, the field of vision narrows known as "tunnel vision"and finally only central vision remains. Also there can be postural problems. Night vision problem begins in teens.

Answered: Sat, 17 Apr 2010
General Surgeon Dr. Swapnendu Sekhar Ghosh's  Response
welcome to healthcaremagic
best treatment involves early detection so that educational programs can begin as soon as possible
the nature of program will depend onseverity of vision and hearing loss as well as age and ability. typically hearing aids assistive listening devises cochlear implants may be helpful
please be under gare of specialist doctors and they will guide you best
in these days of electronic devices and other appliances you will definitely find a solution

Answered: Mon, 5 Dec 2011
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