HI Thank for asking to HCM I really appreciate your concern, and I would advise you to first get it confirm whether this is really Mycosis fungoides because diagnosis is great challenge and always demand the second expert opinion although skin biopsy is the final one that confirm the disease and stage too, second task is treatment, as matter of fact this is incurable disease but progression of it can be control by remission or stabilized the disease and in this way complication can be minimize or eliminate, there are numbers of treatment methods available, right from the sunlight exposure to radiation therapy, local steroid therapy, chemotherapy, allergic condition toxicity and resistance of therapies are taken in to consideration prior to start the treatment, stage of the disease is important aspect, you have to consult the expert dermatologist, physician, pathologist, it is rather team work, life expectancy is good, complication and progress to involve internal organ can be minimize or stop, I hope this information could help you in taking right decision, take care and have nice time.