I have a 33 year old daughter with Charcott Marie Tooth s disease. Her 8 year old daughter was also diagnosed with it just recently. My daughter has undergone surgeries on both feet, and one hip and struggles with day to day activities due to pain. She just recently let me know that her fingers are starting to not work is how she put it. Buttoning her blouse is pretty difficult for her on some days. We were told it would progress and work from the extremities inward but since she is the first in the family to deal with this, we just don t know what or where to go next. Is there something she should be doing to help stop the progression? What about her daughter - is there something she can be doing to stop or at least slow down the progression?