Hi...thanks for posting here...Porphyria
is a metabolic disorder where some sort of pigments accumulate in body and produce symptoms,The type you are suffering is known as porphyris cutanea tarda .You are already reciving correct treatment phlebotomy
and lupus medicine ,but there are certain factors which can aggravate the disease .1.alcohol ;alcohol is known to worsen the condition ,so you should stop it strictly.2.get your blood sugar and liver function tests done since diabetes
and hepatitis c
can aggravate it 3.estrogen,if your taking any hormones then talk it about it to your doctor,since estrogen can worsen it.4.strict sun avoidance always a rule.5.Certain chemicals like hydrocarbons also worsen the condition,so avoid exposure to them.Apply antiboitic cream to your wounds and then apply emollient
on your peeling skin.Do not stop your medicines and please give attention to aggrevating factor .