Hi there ~
I understand your concern. I think that having the charcot marie tooth
disease is not an easy thing. Poor circulation due to the same can be disabling and you should probably also have a lot of pain due to the same. I believe that a visit with an internal medicine doctor will give you cues as to what you should be doing in terms of taking care of yourself and with regards to medications.
I hope this helps. Take care and have a lovely day!