Welcome and thanks for posting your query on HCM.
As per you have Blue rubber bleb nevus
syndrome since birth. I can really understand for the concern for the congenital disorder with mutiple problems of venous malformations of the skin, soft tissues, and gastrointestinal tract.
There are mutiple web sites which can give you authentic latest informations but best amongst them are "Research Gate" and "Pubmed".
You can visit these web sites at regular internal and search for the newer modalities of treatment. These are totally unpaid sites so you need not to pay any money for the same.
Hope these informations are helpful.
Wish you good health,
Dr Sanjay Kumar Kanodia
(MD- Dermatology & STD