Firstly, quite a strong person you are. You have had so much in past & still you are standing strong.
You might be suffering from macroglossia
or pseudomacroglossia due to narrow palate
. please provide some radiographic records so that we can understand the situation in a more better way.
Consult some other maxillofacial surgeon to have a second opinion
. You might need a tongue reduction surgery.
I hope this might help you.
Please do follow up with the proceedings of your case.
Get well soon.
Dr. Himanshu Govil