I have had MS for seven years and I have debilitating Fatigue and Chronic debilitating headaches! I cannot function with the pain, weakness and Fatigue!!! It took me several months after my Diagnosis to determine what would take away the headaches and fatigue!! many of My Neurologists patients took Percocet and it really helps me to make it through the day!! For the Fatigue I started with Provigil back in 2006 after diagnosis and it made my head very foggy!!! I did not like it at all !!! After trial and error with many different meds, right now, Adderall is the best medicine I have found to help with my Fatigue!!! I take 3 Percocet a day for my chronic headaches and My Neurologist doesn't want me to take them!! It is extremely frustrating when you know how the medicine you are taking helps you and your Dr disagrees with you!!! I also have Anxiety, Panic Attacks, and Depression!! It is very scary when you know with MS you can Debilitate very quickly!! My Neurologist wanted me to go on Gilenya back in 2010, although I did not!! in April I saw my Dr and I was supposed to go on Ticefidera(BG 12) and they were supposed to send in my registration and I never received the medicine!! The odd thing is that I had Breast Cancer at 29 years old, and I do have the BRCA1 GENE!! My Mom also had Breast Cancer when I was 21 and 5 years later was diagnosed with Ovarian Cancer!! In March of 1998 when I was diagnosed with Breast Cancer, My Mom was Dying of Ovarian Cancer!! She lived with the Ovarian Cancer for 4 years and died at the age of 60 after my last round of Chemotherapy( Adriomycin and Cytoxin )!
My Aunt also was diagnosed with Ovarian Cancer and lived with it For 4 years as well....what I just cannot Conceive is My Neurologist wanting to put me on 2 oral Meds for My MS when they Drastically lower your white blood counts, which I have read in many Articles that if you have had Cancer or have it Presently, One should Never go on that type of Medication... I just am at a loss here and do not know what to do here!!!! The MS Disease appears Invisible on me, which is Good on 1 hand but Extremely Frustrating Because I look fine on the outside most of the time, although have Debilitating Chronic Headaches, known as Suicide Headaches and also the soooo very Frustrating Debilitating Fatigue!! It's very Hard for other people to understand what I go through on a daily Basis!! I just turned 45 and thankfully I am 15 years out from the Breast Cancer! ON July 17, 2013, I had my 17th Surgery!!! I am sooooo tired of Drs telling me what not to take when it works for me, For Instance the Percocet, 3 tablets a day!! It's my body and I've been through hell and back and I only know how I feel, no one else!! Especially with MS, each Individual with it is very different!! I am just tired and angry and frustrated! What can I do?? I have been suffering for years and I Research constantly about what other patients with my symptoms are taking and not one medicine is good for each individual!!!
So, my question is what do!!!