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Child has swallowing issues after being born with pneumothorax. Has reflux, inner ear blockage. What can I do?

hi there! well lets see if i can give you the short story :) I was diagnosed with full plactia previa @ 25wks PG. was put on partial bed rest. bleed 5 times before they decided to deliver my son @ 36 wks. he was born with a RT pneumothroax and has has swallowing issues since a month old. Told his PEDI. and he said it was from being a premi & that his throat needed to mature. @ 14 wks he was hospitalized with aspriation pneumona, & where they finally listened to me after 14 moths that he has a chocking problem. Found out he aspirated on everything but a honey thickener. Has been on thickener since Feb. and has gotten worse. Has has mucus build up since a month old as well, no history of cystic fibrosis , has bronchnoscopy done in feb and again all the mucus came back in a month. His tear duct was unclogged in Jan and within a month mucus returned. ENT said he had thick mucus like pus and bad reflux . GI doc said nothing abnormal, but does have reflux. Audiologist said he had inner ear blockage, which is balance has gotten worse since Feb & he still doesnt speak Trying to find out what i can
Asked On : Thu, 2 Aug 2012
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Diseases and Conditions
Pediatrician, Neonatology 's  Response
my first thought is may be your child is suffering from a condition called ciliary dyskinesia. This can affect respiratory tract and other secretions.
The cilia do not function well in these patients and is diagnosed by ciliary studies by electron microscopy.Also his kidneys should be checked as he had spontaneous pneumothorax at birth!
Good luck God bless Dr Uma
Answered: Sun, 10 Feb 2013
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