I can understand your concern for your baby. It is important to know whether Gray Matter Heterotopia
is an isolated finding in your child or part of any other abnormality.
Remember that Gray Matter Heterotopia can be part of syndromes as well and is even associated with maternal drug intake like probably alcohol.
or convulsions which you mentioned are refractory or in other words usually do not repsond to treatment with drugs. It is a permanent damage in a segment of the brain, more precisely the cortex
. Surgical intervention can be done in very resistant cases.
Overall prognosis is not good. Please ask your consultant to be as frank as possible and tell you completely what he feels about your baby after a complete head to toe assessment.