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2 years! Non-healing lesions, black specks in skin and sores, on arms and legs

2 years! Non-healing lesions, black specks in skin and sores, on arms and legs, MOLD? I have been suffering from *nearly* the same problem in the past 18 months. Nothing new or strange pre-meditating it, I simply woke up one day with the oddest combination-trauma: 1. the heavy plaque psoriasis patches on both my elbows and both my knees was GONE! Since age 14, now 48, and the miserable 1/4 inch thick scaly/flaky growth had vanished - VANISHED! - replaced by baby-smooth, only slightly dry skin! A miracle, right? No. See number 2.... 2. Both of my forearms had half a dozen or more little itchy red bumps, like pimples. I wondered: did something bite me last night? On both arms? Where is that bug, I thought, if it CURES psoriasis, then I m going to bottle it... The good news was short-lived, however. By the end of the week, those little bumps had become pustules, tiny but terrifying, and had popped like blisters, oozing a clear sticky, *silky* substance constantly. And there were more. The older ones had become crusting. They never dried up. Nothing affected them, although I DID have slight relief when I applied a moist paste of crushed aspirin, like a poultice: when it dried, the pieces broke off and I noticed something else strange, there were uniformly-sized, tiny black specks in the debri, as if SOMETHING had been drawn up from the blister/pustules by the aspirin. They didn t move. But they weren t blood or pus because they wouldn;t dissolve, either. It was determined by the dermatologist I saw, AND an emergency room doc, that my condition, which had spread to both legs, knee to ankle, was not parasitic (no scabies, no impetigo, no mites), was not an allergic reaction, was not any of the common forms of dermatitis or even ringworm... but no one could tell me what it was/is, exactly. Because of the SYMMETRY of it all (both arms, both legs) AND the related disappearance of the psoriasis on those limbs (arms, legs), the best I could gather was I had some weird auto-immune thing going on. By the sixth month, my arms were covered with lesions, blisters and scabs, all in varied stages of launch and lull: they were simply not going to just go away. And I had become convinced that the black specks that were WITHIN the sores, under my skin, were, in fact, SOMETHING parasitic, they HAD to be, even if I couldn t see them *moving*, as such. They are oval in shape, with a distinct - even in their TINIEST stage, barely visibly -- head or top, like a nub, and, in the larger *adult*? ones, (fatter, rounder, not black any longer but a reddish-brown color, some almost TRANSPARENT/TRANSLUCENT), about the size of a straight pin cap (not the ball kind, the regular flat top ones), I can even make out some sort of APPENDAGES, evenly spaced on the sides, maybe two or three on each side, something towards the back... If I knew how to work one, and set up slides, I d have bought a microscope and done so by now... ANyway. They ITCH. Terribly. AT times, I can feel my skin CRAWLING, usually in the area of a pretty active lesion. If I use the tip of a clean Exacto blade, gently lifting a bit of the drying, trying-to-heal-skin around a lesion, two, three, four or more of these little specks ROLL OUT OF MY SKIN and off!!! When I took a tiny vial of some samples to my skin doc, I was made to feel like a FOOL. I was ridiculed for researching on the internet, *reminded* that I have had skin problems all my life (psoriasis) and that the meds I take for chronic pain (spinal, from an injury) and menopause can CAUSE side-effects that would make me ITCH (so therefore, I need to STOP scratching and picking at my skin with a razor blade and let them HEAL ! As if I had somehow caused them in the first place...), and, perhaps worst of all, admonished to get THERAPY because no normal person would collect scabs or skin and put them in a vial to show off (forget that I was bringing in what I thought to be EVIDENCE to HELP my doc see what I was TALKING about, nope, I was COLLECTING bits so I must be OCD or something...). That was the first and LAST time I saw a doc about this. And that was over a year and a half ago. It will be two years this June. In the last year, I have discovered that there was such a heavy concentration of mold AND asbestos in my kitchen, after the 75 year old ceiling of the 100-year old kitchen caved in after a rainstorm (guess what? that rainstorm happened a few weeks before my arms and legs broke out, too) and stayed exposed forever after that (because once it was determined the tiles were the old asbestos kind from the 30 s, no carpenter would even TOUCH the job). I became convinced I had MOLD under my skin. Maybe it didn t START that way, maybe mold simply got in by way of the open blisters during the following months. The table and counters were COATED with a layer of the sooty black stuff, and I couldn t use my kitchen for cooking because the stuff would just float down and into pots and pans and plates, but because the only bathroom in the house, the washer and dryer, the microwave and the fridge were in there, it was inescapable. It took me another YEAR (I m disabled and on SSDI so couldn t get the help I needed to move right away) to FINALLY get someone in a womens aid group to recognize my dilemma and get me into a state-subsidized apartment. I lost my house because no one would help me fix it. And I lost everything in it, because I had no one to help me move everything out of it (and into storage, which I also couldn t afford). So now I live, since last September, in a tiny 2-room apartment, but it s clean and easy to manage, so there was some good there. And the housing agency FIXES problems here, when they occur, unlike the house I WAS living in (and trying to keep buying). It s senior-living housing, but I don t mind. Being disabled puts me in need of this kind of living arrangement anyway. So the lesions on my arms and legs BEGAN clearing up! I must have done SOMETHING right in the move (no longer being exposed to the powdery fall of decades-old mold and asbestos), because 90% of my arms and legs have cleared up, although the SCARS are tremendous, still tender to the touch, PURPLE in color, but at least the skin has grown back over what was once there. BUT, on my legs and arms, there are at least three or four lesions that just won t go away. It is here I know the *problem* seems to have migrated, its last stand or something. These last stand lesions are 10 times worse than the ones that used to cover my arms and legs, because, in these, the concentration of fungi/bacteria/etc. is extremely high. Pull back the edge of one, and the black seed-like little things come rolling and popping out. The ones I ve managed to catch on a paper plate are HARD, like a salt crystal, but are uniform and BLACK, like pepper. The large ones that are reddish-brown color or flesh-colored translucent are more adhered to the lesion, along the edges of or UNDER the scab/crust, and are softer (I can break them in half, and it feels kind of like when you pick a flea off your dog or cat, and break it with your fingernails: it kind of *pops*...). Further, if I clean or wash a lesion thoroughly, then apply any of several creams I have on hand now (cortisone, anti-itch stuff, bacitracin, etc.) black specks RISE to the surface of the wound, but those do not rolloff, they have to be LIFTED off, and they CLING, painfully. They are NOT BLOOD. Most of the times I lift or remove one, there IS NO BLEEDING as long as I m only removing the speck or seed, depending on whatever stage or size it is. I am convinced *SOMETHING* is under my skin and FEEDING off me, content to cluster in the few locations remaining on my arms and legs but stubbornly refusing to completely die off and/or leave... They are nowhere else on me, and I ve haad other wounds and sores, bites and pimples, that have healed and gone away like they should, like they have my WHOLE LIFE. But THIS STUFF, in the three to four or five remaining spots on EACH forearm and leg, I have never seen the likes of, my WHOLE LIFE. Even if, over the next few months, the remaining spots DID slowly dry out/heal/go away, I want to KNOW what the eff this IS (was?), so I can AVOID IT LIKE THE PLAGUE, whatever it is. AND warn others to watch out and be informed/warned, too. WHat DOES this sound like? Can I be any more descriptive? My meds have been the same now, for almost four and a half years: 90mg daily of Kadian (Morphine, for the spinal stenosis pain) and twice daily Cymbalta (for the menopause symptoms) and Vicodin (for the frequent break-through pain) and occasionally 3 to 4 Ibuprofen (for the WORST episodes of break-through pain, an hour or so later when it becomes clear the Vicodin s not making enough of a dent). I smoke a pack a day (i know, I know, but I ve been smoking sine I was 14: I was a 2 to 3 pack a day smoker until about 7 years ago, when I lost my job, home, car, and everything else after my back injury. I just couldn t afford it, so cut WAY back. It s the stress-relief of one now and then I use to cope with constant pain, living on a shoes-string, the LESIONS, etc. Quitting completely s just not going to happen right now), have a Flamepoint Siamese kitty (he ll be 6 in July 2011)... I don t wear makeup, use hairspray, perfume etc. (again, I just don t go anywhere much the past 7+ years, can t afford to). Any guesses? Does anyone else have something similar? All I know is: I m NOT a doctor, BUT I KNOW my body, and I know the difference between a *normal* sore/scab/skin condition, and THIS... *THIS* ain t normal . Frustrated, incessantly plagued and desperate for AN ANSWER... Shea
Asked On : Sun, 6 Mar 2011
Answers:  5 Views:  6703
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Diseases and Conditions
  User's Response
Good grief... Now I get canned responses ... :-/
Answered: Mon, 7 Mar 2011
  User's Response
I think what you described is what I also have - I have tried everything but I think it is something with my body and my immune system is weaker and can't fight it like it once did - because gradually over time it is getting worse. I go to my regular DR for my other ailments, I don't understand why if it is a fungi they can't see that in the blood work or something. I would also like to have answers, maybe together we will.
Answered: Wed, 18 May 2011
  Anonymous's Response
YES I HAVE IT TOO. AND IT SUCKS!!!! I've had it for so long now that (and brace yourself cuz this is bad.) after all these years of "break outs, scabs, watery flamed up extremly painful joints, skin, open wounds that just stick around! FOREVER! (unless you perform home surgery on yourself to "DIG THE HELL OUT OF THESE RELENTLESS COCKSUCKERS IN MY SKIN!" LAYERS UPON LAYERS I remove of ONE F-ING quarter of an inch in size oval that at one end has what appears to be the genitalia of this "NEMOTODE" or it's "moving parts" like a fin to a fish perhaps. And it's my theory that this possible nemotode can move freely about ones body who has this abomination in them and go just whereever the hell it pleases!!!! And I would know because this SOB HAS BEEN IN ALL MY BODY PARTS (I CAN SEE) WHICH SCARES THE HELL OUT OF ME BECAUSE NOW I HAVE GREY MATTER COMMING OUT OF MY SKIN. ON MY BELLY, MY NECK, MY LEGS, MY SCALP, EVERYWHERE.
YA. IT'S IN ME I HAVE BEEN MASSAGING MY SKIN FOR 4 HOURS NOW AND GREY MATTER IS STILL COMMING OUT TO NO END. THE LEISONS ON MY SKIN STILL ARE THERE. NOT BUDGING MUCH. I PROBABLY HAVE SKIN CANCER NOW AND I AM IN SEVERE PAIN IN MY LIVER. EVERY ORGAN OF MINE IS PAINFULL. THIS IS HELL.
AND MY SECOND THEORY IS THAT WHEN YOU USE CELL PHONES OR A LAP TOP,
MINE SEEM TO GET WORSE. WHEN IM IN A BLACK MOLD HOME, MY BODY REVOLTS AND THE THINGS INSIDE ME MULTIPLY. I DON'T THINK THERES A CURE. BECAUSE IVE HAD THIS FOR TEN YEARS NOW. AFTER I LIVED IN A BLACK MOLD HOME BY THE OCEAN. THERE WERE SOME OTHER THINGS BUT IM SURE ITS USLESS TO MENTION.
I HOPE THAT IM GONNA PULL THREW THIS. I DONT HAVE INSURANCE. SO I DO ALL MY OWN SURGERYS AND HOMEOPATHIC REMEDIES.
I HOPE ONE DAY THEY WILL FIND A CURE FOR THIS NEMOTODE THAT SHACKED UP IN MY BODY. IT'S REAL. AND NO ONE'S DOIN ANYTHING ABOUT IT.
WHATEVER YOU DO, MY BEST ADVICE TO ANYONE WHO HAS THIS, IS DO NOT TAKE ANY ILLICIT DRUGS!!!!!!!!! YOU WILL NEVER BE TREATED HUMAINLY BY ANY DOCTOR BUT RATHER YOU WILL BE LABED THE TOWN NUT CASE WHO IS ALSO A CRACK HEAD!!! OR JUST A CRAZZY PERSON. THEY WILL NEVER BELIEVE YOU. SO BE STRONG. AND HELP TO FIND A CURE FOR THIS SILENT EPIDEMIC. IT KILLED MY MOM. AND MY OLDER SISTER HAS IT TOO. BLACK MOLD WAS IN MY MOMS HOME. SHE AND I WERE HER CAREGIVERS. SO SAD. SHE JUST TURNED 60 A MONTH BEFORE SHE DIED. I PRAY FOR ALL THE SUFFERING , I PRAY FOR A CURE, I PRAY I WILL LIVE TO SEE MY DAUGHTER GET MARRIED ONE DAY. PRAY FOR ME.
Answered: Fri, 10 Jun 2011
  Anonymous's Response
I have suffered myself varying skin disorders that have become erratic, unpredictable and and life destroying in the last 4 yrs so I can sympathise whole heartedly with all of you- I can relate. I cant tell you the answer but in my quest for sanity, like you I have turned to the only thing I had, the internet, and as one does when one is house bound and not getting any answers from any "doctors", I decided that no one else knew - or cared enough- to get to the bottom of this extremely complex issue and started keeping a log and coinciding photo diary to help show the extreme stages that seemed to be a cycle of some kind. Anyway in my research a few things came up that could be helpful for you to look into, maybe even to just to exlude from the list of possibilities, a few of these may seem like a minor irritation compared to what your going through BUT things like these that have 'stages' as such ,are on going and come and go with new and old symptoms, are obviously part of a process that at any 1 time can be triggered by ANY external irritant and start a process of immune overreactivity so much so that after the first 'episode' whatever 'it' is can almost become self sustaining, if the external irritant is something in our everyday lives that normally we wouldnt react to or havnt in the pastbut due to a low immunity and a system on over sensitised drive, at that first stage is percieved as an enemy by your immune system which then sends wrong messages like all auto immune issues ultimately resulting inyour body essentially becoming its own attacker - without even the need for an external factor anymore. I hope Im making sense anyway im just going to make a short list point list with namesand no descriptions or ill be here all year and you can look into each ill make 2 lists the first being the triggers or instigating sources and the second chronic disorders I hope I help at least 1 person even if its so you you dont feel so alone, Im no doctor,but I know more about my body than any Ive ever seen and Ive seen ALOT, and I have more invested in my search for answers than just my own health and sanity.

-bird lice/ mites or any other mite including body lice
- allergic flea or insect dermatitis
- tick or mosquito spread diseases
- poison ivy or other allergic skin disorder from an external source
- glass/ asbestos fibres from various and surprising sources such as roofing and wall and floor insulation, fibreglass boats, any place where construction uses such materials that you could come in contact second hand , third hand etc through ppl and their workplace,a car or public transport, a pet,clothing,laundry,
REMEMBER just because it doesnt effect them doesnt mean it wont effect you and thus you can be unwittingly re exposed over and over and not realise
-infection,skin, bacterial,parasitic,fungal etc
- pets, everything they get you are exposed to also but may effect humans differently
- infectious disease that effects skin or immunity severely,eg,chicken pox, glanndular fever, mumps,
- chronic and /or accute underlying skin disorders
- mould spores, heavy metals or chemical toxicity, air borne and soil contaminants like pesticides, lead etc
- drug or medication reaction sometimes these are not immediate or consistant


-morgellons disease
- eczema herpeticum
- prurigo noddularis
- hepatitis/hiv/ liver or renal disease/
- "ID" reaction
- human papoloma virus
-mast cell disease/disorder
- lupus
- xerosis
- small pox
-uremic frost
- dyshidrosis
- bullious pemphigoid
- pustular miliaria
- mycosis fungoids
-lichen simplex chronicus
- nummular dermatitis-discoid eczema
- food allergy
- warts
- molluscum contagiosum
- Papillomatosis Cutis Carcinoides Gottron-Eisenlohr
- Epidermolysis Bullosa Hereditaria
-Acrotrichoma
- allergic vasculitis
- ZOONOSIS

Good luck, we have good days, we have bad days, but at least we have them.

ps for treatment of itch , wounds,etc, ive tried alot I found these are best sometimes i mix them or alternate them.
-high strength pro biotic eg gastro health
- - tea tree oil, cream, ointment
- any cream with lignocain, soove, mediplus, anusol, urax,
-paste of baking soda
- sododerm
- medi honey cream
- moo goo eczema and psoraisis balm
- olive leaf extract
- colloidal silver and silver sulfodiazonine cream/ dressings
-neem oil
- oatmeal bath or poultice
- wet wraps
- epsom salts baths are great for itch, inflamed skin and drawing the poison out of your skin.
- knee high socks- some reason they reduce irritation or habit scratching as not so easy access
anti biotic cream
steroid cream /ointment- i try to avoid these as i have used so many over the yrs ,they have their place in treatment and at other times wont have any positive effect.
- oral antihistamine,drowsy and non drowsy
- give a box of ALL your 'instruments' tweezers scalpels, needles, blades, etc be honest now- to a friend for safe keeping,cut your nails as short as you can without it hurting.
-try and avoid having time to inspect, itch, scratch, pick, cut, whatever it takes, you know your triggers, i had to not close the bathroom /loo door, or i would wear white clothing, things like that do help gain control in an acute attack, because the more out of control you feel the more you will behave that way and usually do a terrible amount of damage in a very short time then feel even worse.
-join an online support group, these conditions make you feel isolated and alienated
not having to feel ashamed and recieving realistic support has such a positive impact on your selfesteem which if possible is the thing that suffers the most -even more than your skin.
- pls give feedback on anything ive said or add any tried and true REAL methods of coping for others to read and not feel so isolated. We will get through this, it may never leave us,but it wont ever beat us.
bye for now ppl. happy days 8-)
Answered: Sat, 11 Jun 2011
OBGYN Dr. Rakhi Tayal's  Response
Hello.
Thanks for writing to us.
You have given a thorough description of your symptoms. It seems that you are having pustular psoriasis. This is an autoimmune disorder and systemic steroids and immunomodulatory drugs are likely to help you. You need to consult your dermatologist to get all these prescribed. Topical treatments will provide only a short lasting relief.
I hope this information has been both informative and helpful for you.
Regards,
Dr. Rakhi Tayal
drtayalrakhi@gmail.com

Answered: Fri, 23 Sep 2011
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