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16 year old with perforated bowel and Crohns disease. Spots on kidney. Suffer from nausea, diarrhea and fever. Advice?

my 16 yr old son has been sick for almost 3 months with abdominal pain, nausea, diarrhea, and low grade fever at times. He has had 3 ct scans. One thought he had a perforated bowel, then it was said that he had chron's and he had a colonoscopy and it was negative for chron's. He has lost 10 lbs. He can't sleep due to the pain. The last scan he had said he had some dark spots around kidney's and that the lymph nodes were swollen, he was put on augmetnin and seeing a gastro doctor next week. Very worried about him and nobody has answers for us. We have also had several blood work ups, urine and stool samples. All was negative.
Asked On : Sat, 13 Apr 2013
Answers:  1 Views:  34
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Gastroenterologist 's  Response
Hello, cnpenney,
Thanks for contacting HCM. Your son's symptoms are of definite concern.
Eventhough colonoscopy was negative , he still could have Crohn's.
If the endoscopist was really good in getting a good look at the last
portion of the small bowel called "Terminal Ileum" , then at least that
part is not affected. Your son should have a small bowel x-ray series
or a Capsule Endoscopy if available near your area. You also mention
enlarged lymph nodes and that may be secondary to Crohn's or he may
have some other problem like Lymphoma or Hodgekin's because of his
fever and weight loss.
But according to your note, all the blood studies were nagative. I am not
sure if that included IBD-Panel (ANCA or ASCA) .
Hope you can discuss these with the GI specialist that he is going to see
next week.
I wish him the very best.
Answered: Fri, 19 Apr 2013
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