The thing that confuses me the most is that having had the lesions REMOVED in July 2013, I should have felt some relief and I have never felt ANY relief! (And she removed 4 lesions, one of which could only be seen with the special Firefly luminescence detection system she is one of the few people who knows how to use!!!). This is why I am fearful of something more serious being wrong! Is there any chance I could have a cancer of some type in the
soft tissue and/or organs in that area that has not been detected and how WOULD it be detected? Would blood tests DEFINITELY show something or does some kind of imaging actually have to "see" a
tumor or growth? If so, can I/should I insist on a more extensive imaging of my abdominal area where the pain ALWAYS is -- I've only had ultrasounds, vaginal ultrasounds, and a
CT Scan, but no PET Scan or MRI; I realize these are expensive tests, but how much constant pain must I endure before they are warranted? Finally, is there ANY chance, do you think, that this could be damage from a vaccine? In 2007 or 2008, I got the series of
Gardasil vaccines -- and, interestingly, shortly after that, I did experience severe
knee pain. Could the vaccine have "given" me the HPV virus and that is what is causing the pain? I have tried to research that, but it is very confusing. Most of all, I just want to know how I can "get on with my life" without so much worrying and, obviously, pain! I will continue with the
acupuncture and some diet changes -- and maybe look into biofeedback -- but nothing really seems to be working!!! If it were a few days each month, I could tolerate this, but this is pretty much DAILY!!! Thanks for trying to help, but please advise me what direction you would go in for someone who has a hard time believing this is ALL
endometriosis pain. Mayo Clinic? Duke University? Any other tests? Thanks!