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What is the life expectancy of a kearns sayre syndrome sufferer?

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What is the life expectancy of a Kearns XXXXXXX syndrome sufferer?
Posted Mon, 13 Aug 2012 in Brain and Spine
Answered by Dr. Harish Naik 2 hours later
Welcome to XXXXXXX
Currently there is no curative treatment for KSS. Because it is a rare condition, there are only case reports of treatments with very little data to support their effectiveness.
Although Kearns-Sayre syndrome probably reduces life expectancy, no numerical data are available. Morbidity depends on severity and the number of systems or organs involved, which widely varies from patient to patient. Heart block is a significant and preventable cause of mortality.
Kearns-Sayre syndrome is a slowly progressive disorder that reduces life expectancy, but specific figures are not available. Prognosis depends on the severity and number of organs involved. Early diagnosis and ECG monitoring are vital because heart block is an important cause of death that is preventable by early pacemaker implantation.
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