Question: It's been some time since I last wrote and I'd like to update you. After putting the past together, both my husband I realized doctors couldn't get past the Chronic Pain and address the two surgeries. FYI, the colorectal surgeon not only discharged me with unchanged bandages which led to infection and a hernia surgery, he has been fired from original office, left to major hospitals and picked up my records from original office; they've disappeared. I tell you this only to verify that he made major mistakes and sounds like he has on others.
the Army doctors diagnosed me with Chronic Pain; to date, the area where the resection at rectum is still very painful along with pressure and, under the hernia repair right now I have ice on my entire abdomen because I am burning. Not indigestion; I took prep for colonoscopy x's 3 plus 8 laxatives and could not be cleaned out. Doctor thought nothing of this, which seems surprising to me. I'm to the point of not trusting anyone; I even called the CEO (also a retired Major General) of the hospital where I lie in fecal matter which the doctor knew and left with infection....called him to ask if he knew an outstanding colorectal surgeon. He didn't and suggested another major hospital. I tell you this because obviously others have had issues and probably sued, and to let you know I am totally upfront and honest in the way my case has been ignored. I can't go through another colonoscopy as it creates more pain; eventually I can evacuate but it can take up to two weeks. I'm very concerned about the burning under mesh where hernia repair was done. I could "fake it" around others until the colonoscopy which is when the burning, from sternum all the way around and under repair, started. I wouldn't begin to know where to go or what to do, but I do know that "Chronic Pain" has caused doctors to avoid looking at what I'm saying. Finally, I insisted the opiates be withdrawn and I'm down to 25 mg Fentanyl and Tramadol - had been prescribed up to 8 Percocet and started at 75 mg Fentanyl. It's good to be off such high doses, but, I'm resigned to home. All because of lack of communication, awful surgery, and messages about gastro pain going to a nurse; my doctor was out for 10 months and I thought nurse would report; she didn't. I'm between a rock and a hard place and the pain is crippling. The resection is right where the "toothache" pain is - isn't there a test that would focus on the two strips of mesh on each end and all around as I feel like it's pulled so tight it restricts walking...I seem to protect that area by my walk. Desperate and frightened; no confidence in any doctor believing this could all be true. I wouldn't believe it because it is so complex and has been so ignored. Hope this finds you doing well and understanding a little of my dilemma. A tens unit is the best I can do for the rectal area but the gastro cannot be controlled except for time.

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Let me back up to the day following hernia surgery - 8.3 cm in size. No pain at surgery point, but I had an epidural - and the pain I describe as labor pain or toothache - fired nerves - was so uncontrollable that I moved in bed so much that I broke the tube for the epidural. Is is possible the needle hit the area of the resection in the rectum or where it was attached.
It took this long to realize my provider didn't provide anything but meds. Once a person is labeled chronic pain (from rear ending) in my case, I didn't stand a chance because that was all that was addressed. Finally, my husband and I got smart and realized the pain in the S-3 S4 (rectum where he attached the colon) was coming from the resection. Too late; already a chronic pain patient. However, I had a colonoscopy and felt like I had a war going on inside; my ribs were sore and the nurse had to push on my stomach as dr had to drive the tube in; it was traumatic. Since then,
is it the least bit possible, because I am having unbearable burning and cramping under hernia mesh or better said, in colon or intestines. He tried to view the small intestines (is this normal) but couldn't. Needless to say, My husband and I are doing all the searching as, I had tests, called provider, who didn't know to pick them up. I'm terrified of trying to find anyone out there so, finally, I'm stuck. Motility? I have never had gastro pain or issues before and nobody is trying to relate the two? If I had a lawyer, I'd see why they are being so resistant to searching, but I don't and my insides are killing me as well as the area in the rectum.

I'm sorry. I was in contact with another doctor, but I will be brief with you - I had minor prolapse and dr said surgery would also help back pain I had from rear ending; He discharged me w/o changing bandages; hernia. Long story, short. Doctor is under legal action from someone else; he admitted I didn't have to have surgery. I had never had gastro problems before and getting cohesive attention here is out of the question because once you see Chronic Pain, eyes are blinded.
The hernia repair was because of infection and the night of the repair I was in agony at the resection site - he removed 24" of healthy colon; pulled it out near navel, capped it and put a hole in side of rectum with two strips of mesh-----this is where the pain in rectum is. The pain in abdomen is under mesh and becoming worse - small intestines? I can't get a lawyer in XXXXXXX because the doctor's are so protected. From active, healthy, happy, to so much agony and I can't get one person to hear from beginning to end. I am otherwise very healthy but the stress of this is causing me to want to curl up and stay home;
Back to night of hernia repair - the epidural was placed near re-section of colon and I was on fire - my nerves; I was writhing in bed and broke the tube - the pain wasn't from the surgery of hernia but where the needle was placed. I have not been the same after that - 8.3 cm Something under the hernia mesh is causing such burning; abdominal cramping.
Colonoscopy - 3 jugs plus 8 laxatives and I couldn't evacuate but dr didn't seem bothered. Eventually there is a path where I do. Now, my stomach rests on the mesh and this creates a problem if I wear a bra and the pressure of anything on the hernia repair is painful. It's so confusing and I trusted a doctor and will never forgive myself. In this state, the patient seems to be wrong. Is this clear at all? I'm sorry, I had meant this to go to a doctor I've told so much to. If you don't want to bother with me, I understand.

Thank you, but this is two years of being without a provider; many thinking my pain was in the back; surgeon connected colon to side of rectum; capping off the other end; nothing but trouble since especially the infection as he left me w/o changing bandages; hernia - didn't do a CT scan before surgery or when I had hernia which turned into an 8.3 cm hernia. Consider where the resection is and where the epidural hit while having repair - my nerves were so on fire (not from surgery but area of epidural) I twisted and turned and, for me, this is unusual, kept calling the nurse because I could not stand the pain. Also, first time ever that my blood pressure dropped - mesh is so high, near sternum covering most of my abdomen (this is for the hernia repair) I could have disturbed the surgery when I moved so much - my provider was in and out so much I didn't get anyone to really check it as at that point it wasn't a concern. Now, several colonoscopies - eventually although a 90 angle now, I evacuate but, the last colonoscopy must have interfered with the intestines; mesh because I AM IN AGONY in my gut. He tried to look in the small intestine. My ribs felt bruised; We know that evacuating, eventually, is ok, but, the surgeon (who is actually running - his initial office said they couldn't speak to me because of legal issues) and he agreed I didn't need the surgery. He did nothing right....colorectal surgery.
The resection - two strips of mesh to hold rectum using staples. I feel like if someone could loosen it, perhaps I'd be better, but, the amount of checking in the rectum has added pain; Two separate issues all caused by negligence of one doctor - he pulled the 24" of colon our about 2 inches above my navel; my stomach rests on it; I cannot wear a bra comfortably and I take short breaths when I do. Unfortunately, without a provider, and most drs thinking CHRONIC PAIN (in back from MVA) I haven't had a chance at anyone taking me seriously. As my daughter said today, "Mom, I don't believe God intends for you to be on the couch the rest of your life, so, if we have to pick you up and carry you, we will get the best doctors in the world" Before the last colonoscopy, I could at least be with others - now the pain in my but is extreme; causing me to bend over and do a lot of crying. The pain in rectum, I'm using a tens for now and I'm raw as meat. I got lost in the cracks; From civilian to Army; my provider was out; reports of additional symptoms she didn't hear about; all I had done from her was meds - I finally, after so long asked for a safe reduction plan, but, I'm on the couch. Otherwise, I am so healthy; was so active and this is wrong. The surgeon who did the colorectal surgery admitted I didn't need it; admitted he failed; suing is out of the question, but I know where he is and I'm going to insist he put that in writing (he knows I can't XXXXXXX him) so I can have my credibility back. Who would believe a surgeon would do a surgery he didn't have to; leave me lying in fecal matter; discharge me wi/o changing bandages - I have a detailed XXXXXXX with each staple - not one bandage. He didn't leave instructions for nurses and I will stop this man from harming anyone else. Anyway, I deserve to get my credibility back - I hear this story, and you're hearing a very short version, and it's pretty hard to believe.
Could the colonoscopy have injured the area where mesh meet membrane/intestines. My small intestines are burning; is it appropriate to try to get a camera into small intestines.
Isn't it unusual for someone not to evacuate after all the prep when one could before surgery? What a nightmare. And I'm losing out on so much. Thank you.

You are so kind. I almost feel defeated because this saga has to be unbelievable. One doctor asked if I'd talked to a psychiatrist. Actually, in length, at Mayo Clinic, so he heard from beginning to after surgeries and said "Err on the side of searching" but it isn't easy once "Chronic Pain" is seen and specialists can't think outside the box. I'm so full of energy in my head but, I just can't function with the pain; at least off opiates, but nothing helps when surgeries aren't looked at closely. I appreciate all you have done to try to help me. I believe you, as a doctor, took an oath and take it seriously. I wish I could say the same here. I'm just tired of being my own advocate and trying to have someone believe a very unbelievable history. It's awful to know what you feel; where you feel it yet, because Chronic Pain is seen, that's my diagnosis. Again, thank you, kind sir. Most likely I'll get up hope again, but tonight, I feel defeated. No doubt that under the hernia mesh my small intestines are in some kind of distress, but, I just don't want to go that route. Take care