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MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease?

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While MRI results showed white spots or flares on the brain, Spinal tap did not show any bands or whatever indicates MS, the 2 evoke tests were both negative, and clinical testing in the office were all good, a Lymes test was negative, my vision is being affected and my finger joints and right hip are stiff and sore. Could I have Lymes disease? I live in Monmouth County, had cat and large dog. All eye exams prove retina is fine. I do have nastagmus. I have a weird pressure in my head specially around the front of my head and eyes that comes and goes. Lying down is the only way to correct my eyes and the pressure. Bending over is not good, looking left and right I have double vision particularly when driving.
Posted Wed, 11 Sep 2013 in Brain and Spine
 
 
Answered by Dr. Luchuo Engelbert Bain 52 minutes later
Brief Answer:
I do not think you got Lyme disease

Detailed Answer:
Hi and thanks for the query,

The clinical scenario and test results to me are not in favor of Lyme,s disease. Absence of living in a tick infested or deer/forest region, absence of notion of classical lyme lesion which is screen redness (Erythema migrans), joint disease or heart disease, this makes the possibility of Lyme disease very very low.

I would not actually love to associate the symptoms to Multiple sclerosis neither, considering the the results of the MRI and lumbar tap.

I would suggest you get a consultation now from an internist. Depending on the clinical results, the opinion of a neurologist or rheumatologist could be sought. Thanks and kind regards. Feel free asking further questions if need be. Wishing you the best of health.

Bain LE, MD.
Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 1 hour later
I do live in an area not far from a very high concentration of deer. WHen I had my dog I took him to an area where there were high reeds and grasses. I have see 3 neuro-opthomologists a neurologist that did the spinal tap, a specialist in MS that sent me right back to the neurologist that sent me to him saying he doubted MS but do the spinal tap. I can not find a doctor that would look any further then MS fully depending on the MRI"S I have had. That seems to be as far as they can think past. Guess it is a no brainer and have reasonable proof if they found themselves in court for what ever reason. Not on my part. I can not find any doctor that will address my eye situation, pressure in my head, why the eye situation is asserbated by movement, lifting movement of my head. No one addresses the double vision when I look left or right. Not when I look straight ahead. My family doctor, Internist was the doctor that sent me to a Neurologist saying I could be having TIA's. I have been to a cardiologist recently and have no problems in this area Stress test was fine. Articles recently in the New York times mentioned that there are many people misdiagnosed with MS that really have Lymes Disease. From the time the symptoms with my eyes first started to the present they have gotten worse. It use to happen only on movement such as running or very long walks. Bending over is not good and I never bend backwards or look up a the sky without closing one eye, usually my right. Now it starts every morning a few minutes after getting up. I can see with no problem, it is just the pressure in my head and pressure around the eyes in the frontal lobe area. If I rub my temples at times it relieves some of the pressure. If I message my head it also relieves some pressure. My neck is sore and my fingers each morning I get up. I feel nausea at times each day but that goes away.I never roll over, bend backwards or look up without closing my right eye.
 
 
Answered by Dr. Luchuo Engelbert Bain 56 minutes later
Brief Answer:
You are right, but I suggest a physiotherapist,rhu

Detailed Answer:
Hi and thanks for the query,

I am happy for the clarification. I am afraid you might have to consult your neurologist once again. It s true that you live in a deer infested area, it is possible that you should have Lyme disease. The clinical scenario and lab tests are actually not convincing in this regard, but I think its a possibility however.

I would suggest you get to work with a physiotherapist. I think physiotherapy could be of use in this case. It might look absurd, but I think and have seen it help many people.

The specialist you need to see in my humble opinion now is a rheumatologist. My idea now for me I think you need top see a rheumatologist and a physiotherapist. Thanks and hope this helps as I wish you the best of health. Do not hesitate asking further questions if need be.

Thanks and kind regards.

Bain LE, MD.
Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 11 hours later
I live in Monmouth County, NJ. Do you know of Physiotherapist you would give me a name of??? I have never heard of a Physiotherapist. What exactly do they do? I trust they went to medical school an are board certified? I also would like a name of a Rheumatologist in this area. I do not want to go to NYC as I have been several times and find those doctors I saw (Columbia Presbyterian Cornell Weil) could not look any further then what the MRI results were and were hell bent to stick with a MS diagnosis. Same thing at Wills Eye Hospital in Philadelphia. They did not seem to care about the spinal tap results. I have only had the basic lymes blood test that was negative. As I mentioned before, it is my eyes that are being affected, now stiffness in my fingers upon rising in the morning which goes away after stretching and using. Some fingers are taking on the knobby look but work fine. My vision is my concern. I use to run and power walk long distances. I do non of that now since my vision tends to dim and balance goes off if I look down or up. If I continue any exercise my vision has gone black and balance way off. I must stop what ever I am doing. Same thing can happen if I carry heavy things like groceries up a slight incline walkway or go up steps several times carrying anything with weight. Bending over as gardening from a sitting position turning my head up and down just looking around can bring on the vision distortion as well as dept perception can be off. I am careful on stairs.
 
 
Answered by Dr. Luchuo Engelbert Bain 32 minutes later
Brief Answer:
physiotherapists are board certified.

Detailed Answer:
Hi and thanks for the query,

I am afraid I might not know specific names of physiotherapists. Physiotherapists however use physical , non invasive, exercise and relaxing techniques to alleviate pain, cramps, stiffness and at times stress. They are of course well trained and board certified.

The opinion of a rheumatologist in your remains a priority. You might have to actually check around and book an appointment with a rheumatologist nearby. Thanks for the query and kind regards. Wishing you good health.

Bain LE, MD.
Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 2 hours later
What is a rheumatologist suppose to do for my eyes??? I do not need a Physiotherapist as I can move with out any difficulty. I do believe what ever is happening with my vision is coming from my neck, spinal cord area. When I lie down prone my vision is fine. Rolling over caused the feeling of nausea of off balance but the vision is fine and is the way I relieve symptoms I experience when up and doing things. Obviously when i am out or at work I can not lie down but I do sit and am still. Sometimes I put my head down on a desk on my folded arms for a pillow. Some times that works. Right now as I type my vision seems to be like I am seeing through a pin point. Seems cloudy, certainly not clear. My neck is stiff and when I bent it to the left it feels sore and like it stretching. I do go to Chiropractor once a week who is very gentle. Does not do the twisting and cracking as some do. My body is tense even when I am doing nothing.

I have lived with a great deal of stress for many years do to a difficult marriage which came to an end with the husband walking out and filing for divorce. That was concluded in 2009.

I do think an MRI of the cervical spin is needed to see what is going on in the spine and neck? Do you agree??
 
 
Answered by Dr. Luchuo Engelbert Bain 30 minutes later
Brief Answer:
Chiropractor, Physiotherapist, could all help

Detailed Answer:
Hi and thanks for the query,

I do agree that an MRI of the spine could help. However, I do believe a more holistic approach is need to better understand what is going on. Rheumatologic diseases generally have symptoms or impacts in multiple structures of the body at a time. It is very possible therefore, considering the context you present with, that a rheumatologic or systemic disease be involved.

The role of a Chiropractor is not undermined in any way in my judgement. However, from my little experience, I think its worth it getting the services of a physiotherapist. Thanks again and hope this helps.

Kind regards,

Bain LE, MD
Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 56 minutes later
What are systemic diseases or rheumatolgic diseases and how do they relate to vision? What type of specialist would be able to treat these diseases? Why would my vision be the only thing that is getting progressively worse?
 
 
Answered by Dr. Luchuo Engelbert Bain 31 minutes later
Brief Answer:
many rheumatologic diseases have eye manifestation

Detailed Answer:
Hi and thanks for the query,

The commonest of these eye manifestations are seen keratoconjunctivitis sicca, anterior uveitis, scleritis, optic neuritis and retinal vasculitis(inflammation of blood vessels of the eye retina or film). All these could cause progressive decreased vision.

Wegener's granulomatosis, cchaug Strauss disease and periarteritis nodosa are a few of a large spectrum of rheumatologic diseases that could affect the eyes.

Thanks once again and hope this helps. King regards

Bain LE, MD

Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 20 hours later
Interesting to know more that a rheumatologist treats then just stiff and painful joints. Our body sure does present interesting challenges. I am going to look up all the conditions you mentioned and then I guess I will track down a rheumatologist/holistic in nature. I am truly tired of the allopathic doctor that can not think out of the box or won't and only relies on tests, especially tests ordered by other doctors seen before their visit by the patient. One does get tired of telling of the same and more symptoms over and over again, especially when the patient is made to feel like they are crazy.
 
 
Answered by Dr. Luchuo Engelbert Bain 27 minutes later
Brief Answer:
You are right

Detailed Answer:
Hi and thanks for the update,

It would be interesting if we could stay in touch so I also get updated, and learn and contribute if need be during the process. It s my pleasure.

Kind regards as I wish you the best of health.

Bain LE, MD.
Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 19 minutes later
Where can I stay intouch?
 
 
Answered by Dr. Luchuo Engelbert Bain 2 minutes later
Brief Answer:
You could have the possibility of submitting the

Detailed Answer:
You have the possibility and discretion to submit direct queries to any physician of your choice on the platform.

But I would be glad communicating. Kind regards,

Bain LE, MD
Above answer was peer-reviewed by
 
Follow-up: MRI results showed white spots on brain. Two evoke tests negative. Joints feel stiff and sore. Could I have Lymes disease? 22 minutes later
Your advice please. When first going to see a Rheumotologist what do I say when asked why I am here. All doctors I have seen all were under the idea I was seeing them for a possible MS diagnosis or to rule out MS. No doctor looked anywhere else especially after reviewing the MRI's and other doctors notes. I will deal with a diagnosis of MS if symptoms are being caused by MS but because of spinal tap results I do not want to just settle for a MS diagnosis if it is something else. When seeing Dr. Cook at UMDNJ, Newark, NJ world known specialist in MS and his response was to have a spinal tap, just the MRI results where not enough to go by. SO I did. It is my vision that is being affected and balance that I attribute to vision problem. Nistagmus is without question. I do have that going on when I look up or left. Right does not seem to be as affected . I am right handed.
 
 
Answered by Dr. Luchuo Engelbert Bain 23 hours later
Brief Answer:
Be simple, clear and he shall help

Detailed Answer:
Hi and thanks for the query,

You might just have to give summary of what you have gone through. Insist on the symptoms you feel, especially with the joints, the neck, the eyes. And tell him you would love these symptoms or clinical table to be analyzed from a rtheumatological point of view.

I hope he shall understand and shall be able to think from a rheumatological standpoint, then get a holistic view of what s going on. Thanks and hope this helps.

Kind regards,

Bain LE, MD
Above answer was peer-reviewed by
 
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