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Suggest Treatment For Severe Fatigue And Insomnia

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Posted on Mon, 24 Apr 2017
Question: I'm a 33-year-old 5'10" white female. My symptoms are many and started when I was about 8 years old. But I'll go over the most debilitating here.

1. Fatigue. Like. Non-stop fatigue. I have insomnia. I don't fall asleep until usually 3 or 4 in the morning even though I'm in bed by 10 or 11, then I wake up every hour or so. The only times I can remember sleeping a solid four hours were when I took heavy painkillers. I've tried different sleep aids (melatonin, ZzzQuil, Ambien, etc.) and they work for a few nights with varying degrees of success, but then stop. I have never in my remembered life woken up feeling rested. Don't even know what that would feel like.

2. Pain. Lots of pain. Muscle pain, joint pain, sometimes even bone pain. I randomly get shooting pains or stabbing pains, like my pain nerves just felt like firing off for a few seconds. Lots of headaches. Frequent jaw pain. Thankfully I don't usually have all of them at the same time, and some times are worse than others, but some part of me is hurting to some degree at any given second. I have been given numerous prescriptions for painkillers but only filled them twice (after an appendectomy and wisdom tooth surgery) because I'd end up sleeping my life away. I have had to limit myself to OTC pain relief meds only in extreme situations because, like the sleep aids, the efficacy wore off the more I took them.

3. Weight gain/inability to lose weight. This has more become a recent problem. I've gained weight in the past but was always able to lose it when I was diligent with my diet. But January 2016, I ran a marathon and weighed 168 pounds. By October, I weighed 219 even though I had no notable change in my diet. At that time I started to train for another marathon I'm running next month, so tried to lose weight. I started a program several of my family members are using. I eat about 1200-1500 calories per day (closer to 1800-2000 on days when I do long runs) and exercise 6 days per week (3 days running, 3 days strength training). One sister has lost 60 pounds (starting at my same specs albeit 2 years older), another lost over 35. My dad has lost 22 since January and my mom has lost 11 in a month. I have lost 5 pounds. Total. Since October.

Other symptoms include irregular periods (though I'm on birth control now, so that's not so much an issue), sensitivity to cold/light, and losing my hair. Also, I have PTSD, depression and anxiety (though I'm able to get these to a manageable level, until some new pill throws me out of whack...part of the reason I'm hesitant to take drugs).

I've never had alcohol. I've never smoked. I've never done elicit drugs and rarely take regular drugs.

Now to the doctors. They tell me I'm perfectly healthy. Every test they run comes back well within the normal ranges. There have been three exceptions:

1. About 10 years ago, they did an ANA test which came back abnormal (I honestly don't remember the numbers, it was like 1:1600) and they thought it looked like lupus (which panel came back negative). The wait for the rheumatologist was so long, by the time I got in, they made me redo the test and of course it came back normal, so they sent me on my way. It's been redone twice since then, always normal.

2. Around that same time, I had a bone density scan done. Diagnosed me with osteopenia, said I was right on the cusp of osteoporosis, and that my 85-year-old grandma's bones were in better shape than mine.

3. They did a complete thyroid panel on me this past year. Everything was well within normal ranges, except my thyroglobulin antibodies. But since that wasn't effecting my other thyroid levels, they said it wasn't an issue yet.

Also, my resting heart rate is between 45-50 and I get palpitations almost daily, but EKGs have always been clean. My basal body temperature tends to run around normal.

They ran a celiac test, which was negative, but since I have a sister with celiac, they suggested I try to go gluten-free anyway, see if it helped. I did it for two years, but it didn't. They also thought I might be lactose intolerant, so I went off dairy. It also didn't help.

Someone eventually diagnosed me with fibromyalgia and chronic fatigue syndrome (the things they give you when they don't know what else to do with you) so I went to a "specialist." He had me taking 48 pills and creams a day. It was miserable. For so many reasons. So I stopped.

And now I don't know what to do. I'm trying to live my life as best I can. I know it sounds like it can't be that bad because I'm running marathons, but if I did only what my body allowed, I'd honestly never leave my bed. I assure you, the pain is real. And excruciating when I'm training.

But I am so tired. And in so much pain. And I want to be able to actually do all the things I love doing.

Any ideas what direction I can take next? Or do I just accept my fate, that there is no answer, and that my perfectly healthy body just hates me?
doctor
Answered by Dr. Dr. Erion Spaho (2 hours later)
Brief Answer:
Thyroid function to be reevaluated.

Detailed Answer:
Hello and thanks for using HealthcareMagic.

I have read your question thoroughly and understand your concerns.

You have had numerous tests done already and they resulted negative in the view of achievement of a correct diagnosis, so, it remains little to be done regarding more tests.

If I were your treating Doctor, I would reevaluate the thyroid gland function (since there is weight gain lately) and previous evaluation was several months ago.

I also would reconsider the chronic fatigue syndrome and conditions that may cause similar symptoms.

These conditions include Epstein-Barr virus infection, herpes virus 6 (HHV-6) infection, pneumonia, immune system problems, hormonal imbalances due to dysfunction of pituitary, adrenal and hypothalamus glands.

If all these above-mentioned conditions excluded, in the end, anxiety and stress disorder, depression etc. may be considered,

Hope you found the answer helpful. Let me know if I can assist you further.

Kind regards.


Above answer was peer-reviewed by : Dr. Arnab Banerjee
doctor
Answered by
Dr.
Dr. Dr. Erion Spaho

Neurologist, Surgical

Practicing since :2004

Answered : 4492 Questions

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Suggest Treatment For Severe Fatigue And Insomnia

Brief Answer: Thyroid function to be reevaluated. Detailed Answer: Hello and thanks for using HealthcareMagic. I have read your question thoroughly and understand your concerns. You have had numerous tests done already and they resulted negative in the view of achievement of a correct diagnosis, so, it remains little to be done regarding more tests. If I were your treating Doctor, I would reevaluate the thyroid gland function (since there is weight gain lately) and previous evaluation was several months ago. I also would reconsider the chronic fatigue syndrome and conditions that may cause similar symptoms. These conditions include Epstein-Barr virus infection, herpes virus 6 (HHV-6) infection, pneumonia, immune system problems, hormonal imbalances due to dysfunction of pituitary, adrenal and hypothalamus glands. If all these above-mentioned conditions excluded, in the end, anxiety and stress disorder, depression etc. may be considered, Hope you found the answer helpful. Let me know if I can assist you further. Kind regards.