Question: I am a 50 yr old male and I posted elsewhere on this site, however I would like you to review my concerns. I have come to value the opinion of the staff on this site.
I had an outbreak that was very mild XXXXXXX 2012. I had tingling redness a few bumps on my scrotum and shaft, itching and pure panic. Soon after i also had my first lip cold sore. I believe I have HSV-1 in both places. The visible genital symptoms lasted a couple of days, and by the time i saw my urologist (history of prostatitis), he refused to diagnose GH. I went to lab-corp twice in 3 months, and it shows I have HSV-1 captia igg at 6.4 level and it has been there for a while no IGM negative for HSV-2. I went back to him with results, and he still refused to buy it. Saying he has never seen Genital HSV1 and the great majority of people have hsv1 "go see a neurologist for the sacral pain". I have since seen a spine surgeon, a neurologist, and now a pain management doctor had sacroiliac injections, and recently bilateral piriformis injections. My symptoms are burning coccyx pain, buttock pain and paresthesia on both sides of my glutes going down both legs. I can't sit for 20 min. without being in constant pain, and discomfort. There is some bulging of lumbar disks L3-4 and L4-5 but nothing that would cause major problems. I am sure this is herpetic, and really don't know how to handle this I have not pressed my concern with the pain management doctor. I told his resident doc. that does his prep visit of my concern, and she shrugged it off saying i would've have had alot of pain if it were GH. Constant tail bone pain numbness in my seat, and gluteal pain, nerve crawling sensation in my glutes through anus etc. I am desperate for help. Can you suggest my next course of action? I have had a couple of courses of Valtrex 1000 mg 3 times a day for 10 days, and am now on 1000 mg 1 time daily at my insistence with my GP. He prescribed "Valtrex for idiopathic neuropathy" I'm also on 100 mg of Lyrica 3 times daily. Need a professional opinion as to whether this type of consistent pain going on 1 year is a possible side effect of GHSV1

Thank you for your response. I have had blood tests checking for autoimmune conditions, all herpes viruses, lyme disease, (only evidence of HSV1) nerve conduction testing, also forgot to mention I recently had a caudal block (no steroids) and that took care of all the paresthesia running down my leg and all of the sacral discomfort for a day or so. In addition, I have a few itchy bumps a couple of weeks after Piriformis injections at, at the top of my buttocks, after running my tens machine on high setting for about 4 hours. I know I may be reaching but could this be a result of the steroids causing a herpetic eruption (again no blisters or open sores or crusting) at a new site? I have had 5 series of injections within the last year and no problem before this. I realize I am all over the map here but what has been constant is this pain in the sacro-coccygeal area nerve tingling and constant radicular pain throughout my seat going down both my legs front and back. This has not been good. I will continue t follow up with my neurologist. Any other observations on your part would be greatly appreciated. Thank you in advance!!