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Enlarged spleen, kidney swelling, low platelet count, facial rash, allergic rhinitis. CT scan suggests lupus. Can someone point me in the right direction?

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Practicing since : 1985
Answered : 45 Questions
HI, I just turned 30 two weeks ago and have decided that this is the year I will achieve health. I would like a doctor to review my history and recommend a direction to begin working towards health. I am sick of being passed to different specialists, being given a list of diagnosis and then never having any doctor look for what the connection is. In the last few yrs I have seen and been treated by rheumatologist, endocrinologist, gastroenterologist, anesthesiologist, orthopedist, neurologists, sleep doctor, dermatologist, cardiologist, family doctor/s, perinatologist (high risk pregnancy), allergist/immunologist, urologist/nephrologist and even a psychologist (who referred me to a neurologist). I've done physical therapy and everything else under the sun. My symptoms, labs, diagnosis etc are all over the place and I just want to work on achieving health so I can once again be active with my husband and 4 children. The list of diagnosis seem ridiculous- some things I have been DX with- Hashimoto's thyroiditis, Narcolepsy, Anemia, Adrenal insufficiency, RSD/CRPS, Fibromyalgia, migraines, Psoriasis, psoriatic arthritis, eczema, Crohn's, Gluten intolerance, lyme disease, chronic mono, chronic recurrent sinusitis, allergic rhinitis, asthma, chronic candida/thrush, non diabetic hypoglycemia. for several yrs drs have pushed around the lupus suggestion due to CT scan results ( enlarged spleen for 1.5 yrs, kidney swelling, infections,etc) low platelets, facial rash, positive XXXXXXX etc,etc. I have resisted returning to a doctor now after childbirth aside from my GP and my sleep Dr who is the only one that seems to look at me as a whole person as opposed to a "sleep issue" (he looks for a connection with symptoms). I'd like a doctor who will at least temporarily ignore all of my "labels/diagnosis" and go from history, labs, etc and form his/her own opinion and recommendation. I can no longer spend 55-70$ per visit to see each different specialist and never make any progress because noone looks at interactions of meds, symptom overlaps, connections,etc. Please can someone point me in the right direction?
Posted Sun, 22 Apr 2012 in Lupus
Answered by Dr. Praveen Jadhav 12 hours later
Thanks for posting your query.
With the myriad of the diagnosis that you have received, lupus does remain a possibility.
As I believe that more information can help a physician arrive at an accurate diagnosis, I would request you to give me a detailed description of your symptoms.
I would also request that you get yourself tested for anti-nuclear antibodies(ANA) which would serve as a screening test for SLE).
Awaiting your reply
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