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Diagnosed with Postural Orthostatic Tachycardia syndrome. Having indigestion problem. Prescribed Vancomycin and Zosyn. Guide?

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General & Family Physician
Practicing since : 2000
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Hi- THis has been the question of my lifetime. I have had testing under the sun and nobody has an answer for me even at the Cleveland clinic where my doctors are. I was diagnosed with Postural Orthostatic Tachycardia SYndrome. Directly after the death of my baby Directly POST my babys death I started to have belly issues- undigested food in stool which consists of ANYTHING . veggies, tomatoes, corn, seeds, even my stools look fatty and yellow at times. Sometimes theres full beans (black beans) completely un touched. Sometimes its very hard and brown with STILL undigested food sometimes its lighter brown sometimes yellow brown and mushy. I have had weight loss because of it (I went from 149 post pregnancy to 123) prior to pregnancy I was 135 ... this weight loss has been in a 6 month period- and IM EATING

Right before Noras birth- I was also given Vancomycin, Zosyn multiple times because they thought I had a uterine infection (and I ended up NOT having an infection) - and 2 days after that the belly problems started...and my symptoms of PoTs

the tests have been as follows
Colonoscopy that showed a sessile polyp and removed- otherwise the colonoscopy was negative
my EGD showed Gastritis - otherwise negative
both the EGD and colonscopy had biopsies that showed nothing. They took biopsies from my stomach and my bowel.
I have had a hida scan which is normal.
I have had a RUQ ultrasound- which is normal
I have had MANY and I mean MANY cat scans of my abdomen and pelvis- which are normal.
I had a celiac panel done- which is normal and negative for celiec
I was tested for Crohns, Colitis, bowel diseases which are negative
I was tested for pancreatic issues - came back normal no autoimmune pancreatitus or anything of the sort
they tried me on Creon just to see if I wasn't having enough pancreatic digestive enzymes. - - didn't help.
I had a gastic emptying test on my stomach- also normal
occult blood was positive (they did this prior to doing EGD and colonoscopy- but found XXXXXXX hemmroids and nothong else)

stool samples for Cdiff, and other bacteria - all negative
and yes they found fat in my stool

I was getting better... taking probotics- then I was put on Amoxil and had a bag of rocephin and I got WORSE again.

the only positive test I have had is my small bowel series showed rapid transit time. ... my whole Small bowel series only lasted 35 minutes............the doc just said rapid transit time. otherwise NOrmal small bowel series

I was 135 prior to pregnancy- im down to 123. and still losing again.

CBC's , BMP's , all blood work to have done has been negative.
I did have a positive XXXXXXX 1:160 speckled and they tested for autoimmune diseases - all auto antibodies came back negative and I show no signs of autoimmune diseases

Thyroid levels are normal. (TSH, T3, and T4)

I AM CONCERNED AND UPSET I HAVE NO ANSWER. this has been going on for 7 months now.
I have even had MRI of my brain , CT of my brain, lumbar punctures , tested for MONO & EBV . negative for TB . I have had thyroid biopsies and ultrasounds all negative. they have no answer for me...

I have been under MAJOR STRESS since my baby was born. Anxiety. Depression. I wake up anxious all the time. im sick of this. actuelly I have been under major stress since 2 months after I got pregnant as I bled my entire pregnancy and lost her at 23 weeks.......

why the belly issues? all normal tests except for RAPID Transit...... I don't understand im scared- and feel im going to whither away. I don't have stomach pain- only nausea and that's just been recent. no bloating no pain.

I wanted to add I have also been tested for Carcinoid which was negative.
I do have HPV in my blood I had a papilomma (sp) that was taken off my uvula in the back of my mouth
Posted Thu, 11 Jul 2013 in General Health
Answered by Dr. Divya Kuttikrishnan 8 hours later

Thanks for writing in.

Sorry to know that you are in distress and the fact that even after a multitude of tests there is no clear cut diagnosis.

Also, sorry about your loss ... Just hold on and hang in there. I understand that you are scared and sad. But no.. you are not going to wither away. Don't give up.

Sometimes anxiety and depression after the loss of a baby can present with symptoms similar to the ones you are having.

I would advise you to do the following...Since you have almost been evaluated for everything under the sun, it wouldn't hurt to try the following measures.

A daily dose of probiotics, Or include curd in your daily diet. Curd contains the good bacteria lactobacillus.

Sign up for yoga classes , if you have a good instructor in your area.
Meditation and relaxation techniques will definitely help. It will help you be strong mentally.

Regular exercise 30 minutes a day 5 days a week (after consulting your physician).

Avoid oily and fatty food . Eat healthy.

Drink 8-10 glasses of water a day.

I hope the above measures will help you. All the best.

Dr. Divya Kuttikrishnan
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