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7 years old diagonised with parkes weber syndrome. How bad it is? Need surgery?

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Practicing since : 1997
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My nephew had been diagnoses with parkes weber syndrome he is 7 years old , one of his leg is larger than the other no blood stains only it looks more red XXXXXXX the other , i want to know how bad is this illness ? does any other children had been cured completely from it or there is only a life time treatment and thats it ? is surgery is a solution? please advice ..
Posted Tue, 2 Oct 2012 in Genetics
Answered by Dr. Santosh Kondekar 5 hours later
This is a rare condiiton… is genetic and has propensity to grow…
Now it only is more red looking but its better to control the vscular communication before it creates life threatening problems.
There can be permanent solution depending on severity of comunication and blood flow…
…already limb is larger in size…… may grow more n get complicated…
Apart from surgery… intervention therapy through catheter may also help in select cases…
If possible please detail me doppler report.
Hope this answers your query… call back if any further issues.
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