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Treatment for Neuro fibromatosis - Online Doctor Chats

Date : 13-Jan-2012
User rating for this question
Excellent Posted in: Stroke
Answered by

General & Family Physician
Practicing since : 2005
Answered : 2380 Questions
Doctor :   hi
Doctor :  
how can i help you?
User :   Sorry doctor my system got crashed
Doctor :  
why are you chatting in two different windows?
Doctor :  
ok
Doctor :  
shall we continue the chat in this window then?
User :   yes
Doctor :  
have you followed what i have said uptil now?
User :   may be last 2 replies i havent received
User :   will there be any medicines to control these neuro fibromatisis
Doctor :  
i was telling you about the MRI scan
Doctor :  
there are no such medications to control these
Doctor :  
the only therapy for those people with neurofibromatosis is a program of treatment by a team of specialists to manage symptoms or complications
Doctor :   Surgery may be needed only when the tumors compress organs or other structures
User :   ok
Doctor :   Is there any thing else I can help you with?
User :   i asked the doctor about all these he just told to forget about these tumors as they are not serious according to him
Doctor :   now since you do not have any other symptoms, he would have told you this
Doctor :  
but in my opinion
Doctor :  
your headaches are a concern to be looked at
Doctor :  
especially after knowing that you have got neurofibromatosis
Doctor :  
if something can be prevented now
Doctor :  
why you want to wait till some complications arise?
User :   i wont wait i will do the checkups
User :   i am just asking you
Doctor :  
so get a MRI brain and neck done to rule out all possibilities related to these for your headches
User :   and any tests to know type1 or type 2
Doctor :  
this will be for your safety only
Doctor :  
the karyotyping will show you the type of neurofibromatosis
Doctor :  
in case of type 1 there will be mutated gene on chromosome 17q
Doctor :  
and in type 2, it will be on chromosome 22q
Doctor :  
so next two steps that you will need to follow is
Doctor :  
1) MRI brain and neck, apart from your master checkup
Doctor :  
2) karyotyping for both you and your wife
Doctor :  
have you followed what i am saying?
User :   yes
User :   sure
Doctor :  
Is there any thing else I can help you with?
User :   no thanks i will get back to you in next few days once these are done
User :   thanks doctor
Doctor :   you can get back to me with the results
Doctor :  
or you can mail me the results at YYYY@YYYY
User :   ok
User :   bye
Doctor :  
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Doctor :  
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