Get your Health question answered in 3 easy steps
A Doctor will be with you shortly
Ask a Doctor Now
143 Doctors are Online

Suffering from Wilson's disease - Online Doctor Chats

Date : 21-Feb-2012
User rating for this question
Very Good Posted in: Liver and Gall Bladder
Answered by

General & Family Physician
Practicing since : 2004
Answered : 1722 Questions
User :   Dear respected sir, my younger sister is suffering with very rare disease called "WILSON DISEASE". Can you please how to treat this disease
Doctor :   Hi
User :   may i know from where you are from?
Doctor :   India
User :   can you please respond to my above query
User :   ok , gr8 sir
User :   are you into which department ??
Doctor :   the treatemnt for the disease is by copper chelation using chelating agent like penicillamine
User :   just 3 days back we have started giving penicillamine
User :   ok
Doctor :   good , this will help
Doctor :   but in later stages or in severe Liver transplant would be a resort
User :   along with pencilliminia she is taking zinv and pacitone
User :   like other tablets she is taking
Doctor :   ok, fine
User :   really appriciate your best suggestion?
User :   shall we meet "gastroentrology" or Neurology Drs??
User :   ok
User :   currently we are dealing this case with Neurology only?
Doctor :   first approach would be to gastroenterologist later on his advice you can consult a neurologist
User :   ok sir
Doctor :   it needs an integrated approach by both
User :   ok
User :   as per your knowledge how long it will take to overcome from hand trimmers and like not able speak
User :   currently she is not getting words freely and hand trimmers are thtre
Doctor :   the symptoms do come down in a bout 2 to 3 weeks of initiation of the treatment
User :   o sir
User :   ok* sir
Doctor :   but the over all prognosis of the illness can be decided over Serum copper levels ceruloplasmin levels and LFT
User :   ok
User :   is this lever transplantation reauired for every one??
Doctor :   no ,
User :   ok
Doctor :   only in very severe cases , based on the findings in the liver biopsy
User :   i have the reports with me , if you give me the permission , will scan and send it to u
Doctor :   yes., sure
User :   ok , thanks a lot sir
User :   my parents really really worried about her health condition , and that too my sister is day by day she is really going very depressed state
User :   ok sure
User :   your kind help and suggestion is reauired in this case
Doctor :   do not worry , your sister being depressed can be due to illness again
User :   till now we are in a state where to go and whom to meet
Doctor :   once the illness comes down , the depression and anxiety will surely come down
User :   now i cleared with gr8 suggestion
User :   ok sir
User :   can you please suggest me one thing , is this pebncilliminia is lifetime drug??
User :   just 3 day back we have started this "pencillimini"
User :   ok sir
Doctor :   its well known , i do not have much information about their dealing with Wilsons disease , but here are good neurologists and gasteroentrologists
User :   ok
User :   what kind of side effects from pencilliminia"
Doctor :   well the treatment with pencillamine is not for long term
User :   ok gr8
Doctor :   the duration depends on the lab reports
User :   currentlu we are giving 1 tablet fr day
Doctor :   ok,fine
User :   what the DR suggested is after one wek , she can go fr BOD
User :   bio fr day
Doctor :   ok,
User :   can you give me some precaustions need to followed
Doctor :   yes, avoiding copper containing foods is a important step in prevention
User :   we are not clear about these things
User :   to follow the best one , what is teh best way
Doctor :   like liver , shellfish , chocolates , dry nuts like pista , mushrooms etc
User :   already we are avoiding above ones
Doctor :   and to consume food rich in fiber
User :   and to consume food rich in fiber ... canyou please brief this ANS please
Doctor :   consuming foods like Apple , banana , isobgol will help
Doctor :   And consuming more water is very helpful here
Question is related to
Diseases and Conditions
© Ebix, Inc. All Rights Reserved.
All the information, content and live chat provided on the site is intended to be for informational purposes only, and not a substitute for professional or medical advice. You should always speak with your doctor before you follow anything that you read on this website. Any health question asked on this site will be visible to the people who browse this site. Hence, the user assumes the responsibility not to divulge any personally identifiable information in the question. Use of this site is subject to our Terms & Conditions
Already Rated.
Your rating:

Ask a Doctor