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Query about mastocytosis and diffuse idiopathic skeletal hyperostotis syndrome - Online Doctor Chats

Date : 21-Feb-2012
User rating for this question
Excellent Posted in: Genetics
Answered by

General & Family Physician
Practicing since : 2004
Answered : 1722 Questions
User :   Hello. I have been diagnosed with DISH Syndrome and indolent Mastocytosis by a specialist at Mayo Clinic in Rochester and am awaiting treatment options. My DISH is so bad that my Rheumotologist at Mayo said he has never seen a spine that is as bad as mine. What are my treatment options and what about Social Security Disability?
Doctor :   Hi
Doctor :   May I know your age and gender?
User :   Yes, my age is 57 and I am a male
Doctor :   Can you describe the symptoms that you have?
Doctor :   Have you undergone scans of the spine, if yes, do you have the reports with you?
User :   Yes, the onset of my illness was about a year ago and has progressed to the point that I have been on catastrophic medical leave for about six months. I have undergone several scans of my spine and x-rays as well.
Doctor :   Ok
Doctor :   Let me explain to you.
Doctor :   The cause for DISH syndrome is not known, however an inflammatory pathology is offen associated with this condition.
Doctor :   It is usually symptoms being the pain, and treatment is mainly conservative
User :   I understand that my DISH will never improve but the biggest symptom I have is severe fatigue and itching. I know this is from the mastocytosis.
Doctor :   medical drugs such as antiinflammatory pain killers, steroid therapy is the choice of treatment
Doctor :   Mastocytosis is a different entity.
User :   Should I submit a claim for disability?
Doctor :   Symptoms of mastocytosis are often due to the histamine release.
Doctor :   and various drugs are available to prevent histamine release and thereby by treat the symptoms.
Doctor :   again, the treatment here is non surgical.
Doctor :   Your treating doctor will try out few drugs which includes combination of
Doctor :   antihistamines, mast cell stabilizers with or without steroids.
Doctor :   further evaluation to look for possible allergies will also be looked for.
Doctor :   And measures to prevent allergies will be suggested.
Doctor :   Since, I do not have the access to your reports, and neither can I physically examine you,
Doctor :   my answers to treating you are limited.
Doctor :   These are the possible treatment options you have.
Doctor :   You can discuss with your treating doctor who will put you on the right choice of medications, modify them regularly.
Doctor :   This will definitely help you in leading as normal life as possible.
Doctor :   Have you followed what I have suggested?
User :   Yes, doctor I thank you for your information. At this time I am awaiting final reports by my doctor on the results of my bone marrow testing but he is convinced I have Mastocytosis.
Doctor :   Most often Mastocytosis is a benign condition,
Doctor :   however you may need medications for a long period of time.
User :   Thanks again,
Doctor :   With proper choice of medications, antiallergic prevention, and destressing measures, you should be able to lead a healthy life.
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