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Neurofibromatosis, malignancy chances? - Online Doctor Chats

Date : 21-Feb-2012
User rating for this question
Good Posted in: General Health
Answered by

General & Family Physician
Practicing since : 2009
Answered : 594 Questions
Doctor :   Hi
Doctor :   Please proceed with the query
User :   I wanted to ask you a query regarding a condition i have
User :   neurologist told it as
User :   neurofibromatosis
Doctor :   ok
User :   basically i have muscular (soft) swelling all over my body in different places
Doctor :   ok, from how long
User :   it started coming one by one
User :   for like 4yrs
Doctor :   at what age.
User :   i m 23 now
Doctor :   what is your age right now
Doctor :   how big is it in cm
User :   the swellings are painless, and of varied sizes
Doctor :   ok
User :   the one that came 1st is a bit bigger
Doctor :   any skeletal changes
User :   no, all the swellings are just under the skin
Doctor :   ok
Doctor :   but you can feel it
Doctor :   how many.
User :   its like 10 15
User :   all over the body
User :   yes doctor i can feel them
Doctor :   ok
Doctor :   Any bending of back, any seizures?
User :   no doctor
Doctor :   ok, have you shown to any neurologist
User :   yes
User :   yes
Doctor :   what has he told
User :   he told its some kind of nerve tumour
Doctor :   yes
User :   another doctor told its neurofibroma
User :   of some sort
User :   i wanted to know, what is the possibllity of it turning cancerous
Doctor :   unless it is investigated we cannot make out
Doctor :   that is after biopsy
User :   i consulted an oncologist too, he mentioned its not cancerous
User :   but would you suggest going for a biopsy?
Doctor :   ok,you say there is no pain.
Doctor :   and no outward growth.
User :   pain, only in a few tumours but on pressing hard
User :   what do you mean by outward growth?
Doctor :   you said you cannot see it outside.
User :   the swellings are visible
User :   its like small buttons on just under my skin
Doctor :   ok
Doctor :   it can be non cancerous
Doctor :   for many years
User :   ok
Doctor :   or can turn cancerous in few yrs or remain benign
User :   ok
Doctor :   it might just affect the surounding nerves causing compression and pain
User :   ok
Doctor :   so sometimes they do surgery to remove it when it causes pain or for aesthetic purposes
Doctor :   so biopsy in my opinion is better
User :   ok
Doctor :   to rule out
User :   ok doctor
Doctor :   any difficulty in vision or speech
User :   no, no probs in any functionality
Doctor :   what is your sex.
User :   Male
Doctor :   ok
Doctor :   do you have any other queries.
User :   no doctor, thank you for your time
Doctor :   ok, kindly login for further queries.
User :   sure doctor
Doctor :   bye
User :   bye doctor
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