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Diagnosed with MCTD and scleroderma - Online Doctor Chats

Date : 21-Feb-2012
User rating for this question
Excellent Posted in: Lupus
Answered by

General & Family Physician
Practicing since : 2005
Answered : 2407 Questions
Doctor :   hi
Doctor :   dR XXXXXXXX here
Doctor :   How can i help u?
User :   Hi,
User :   my GP is thinking that I have either MCTD or Sjogren
Doctor :   ok
User :   I have looked these up on the net and they read to be more serious than I realised
Doctor :   may i know your symptoms ?
User :   fagtiue, mouth ulcers, aching joints, headaches, flue like symptoms, throat problems,
Doctor :   how long have u had these issues ?
User :   oh, and I have an abnormal blood readings, from 2005 to now, which show a mild inflmation =- symptons from 2005]
Doctor :   ok
Doctor :   have u done any tests as well
Doctor :   May i know your age, weight, height as well?
User :   not me only the doctor - I have just looked these up on the net today when I got home
User :   my age is 49 I am f' 1" and weight is about 15 stone
Doctor :   ok
Doctor :   did you have any family history as well
User :   mother has diabetis type 1, scloderma and porphyria and recent dementia
Doctor :   any way i would like to do some blood tests proper diagnosis
User :   how is that possible over the internet.?
User :   My main question is .... how serious are mctd and sjogren?
Doctor :   Scleroderma is a form of MCTD so you may be genetically predisposed to have similar conditions
User :   oh okay.
Doctor :   i mean to say, that i would suggest you ask your doc to do them, if not already done
User :   oh yes that makes more sense
User :   Is it possible that MCTD is a for runner for scleroderma then?
Doctor :   Check yourself out for SLE ( DSDNA, antihistone antibodies, ANA, etc.)
Doctor :   yes, Scleroderma is a form of MCTD
User :   what are the odds that I go on to scleroderma
Doctor :   IN which the collagen fibres in the body get thickened and cause widespread body disorders
Doctor :   25-50% chances
Doctor :   but before get the tests that have been suggested
User :   Do I need to keep a close eye on my health and things - or can I just forget about it until things get really bad.
User :   Yes I will ask dr for more tests
Doctor :   also consult a rheumatologist, who will guide you about the treatment modalities
Doctor :   you may be helped by immunosuppresion, started at a early stage
User :   Thank you. My GP has already talked with a professor at XXX with regard to my symptoms
Doctor :   good
User :   Dr has already suggested an antimalerial drug - but with the family history of porphyria we decided against it
Doctor :   i hope that the symptoms will be less and you will get better with the proposed treatment
Doctor :   oh ok
User :   as the specialist in cardiff (porphyria) advised me to keep off them if possible as I have the defective DNa gene for porphyria
User :   Thank you.
Doctor :   ok
User :   On a scale of 1 -10 (10 bad) How much should I worry?
Doctor :   there is nothing acheived by worrying
Doctor :   the only thing should be done to have the will power to go on and enjoy each day
User :   good answer, I'm guessing I need to take this seriously but not let it change my life then
Doctor :   but frankly, the symptoms may affect you on a scale of 4-5
User :   Thank you very much for your help and advise I will act accordingly.
Doctor :   but these can be met with prophylactic medications
User :   Goodbye.
Doctor :   and u will feel better
User :   okay
Doctor :   thanks and bye for now
Doctor :   nothing cannot be achieved when there is will power and prayer
Doctor :   with the patient
Doctor :   so be strong and you will beat it
User :   I am training as a XXX , so faith is what keeps me going daily ....
Doctor :   good
User :   Bye
Doctor :   bye and godspeed
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