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A Neurofibromatosis - Online Doctor Chats

Date : 13-Jan-2012
User rating for this question
Very Good Posted in: Cancer
Answered by

General & Family Physician
Practicing since : 2005
Answered : 2398 Questions
Doctor :   Hi
Doctor :  
How can I help you?
Doctor :  
Are you there?
User :   Hi Doctor
User :   I am Sasi
User :   from Hyderabad
Doctor :   Yes Sasi

Doctor :  
Continue with your query
User :   I am having tumors below skin in arms , in other places total of 6 to 7 visible + headache + weakness
User :   other than that i am fine
User :   i visited a doctor and came to know that i am having neuro fibromatisis
Doctor :  
Ok
User :   he just touched my tumors and seen them and told i am having this disease
User :   no more tests nothing
User :   now in net i came to know that this disease of different types like 1 , 2 and 3
User :   now i am worried which type i am having
User :   my doctor simply said forget about these tumors because there are not dangerous
User :   can u tell me by my symptoms
Doctor :  
Ok
User :   if u know anything
Doctor :  
There are 2 types
Doctor :  
Yes I know something, I hope
Doctor :  
I cannot say that I know everything
User :   and is this disease so critical or danger , i am married and no one in my family knows till now and i am thinking thinking
Doctor :  
If it was dangerous, would your doctor advise to forget about it?
User :   true but i went to small hsopital and he just touched them and said , i am not sure
Doctor :   Ok

Doctor :   Neurofibromatosis is a genetic disorder of the nervous system
Doctor :   It mainly affects how nerve cells form and grow
User :   ys i studied all doctor in net
User :   my question was NF2 is primarly will have hearing loss
User :   NF 1 will now
User :   i dnt have any hearing loss
Doctor :   Yes
User :   but i have headaches
Doctor :  
Ok
User :   NF1 will cause headaches ?
Doctor :  
Yes, headaches are there
Doctor :   Since FNAC is done, it is confirmed as neurofibromatosis now
User :   fnac IS NOT done
User :   FNAC means
User :   ?
Doctor :  
Fine needle aspiration cytology
User :   that was not done
Doctor :  
You have undergone a test right?
User :   he just touched with his hand
Doctor :  
which one was that?
Doctor :   Ok

Doctor :  
I would suggest you to reconfirm the same then
Doctor :  
It would be better if you could consult an oncologist
Doctor :  
as it serves dual purpose of superspecialist opinion as well as second opinion on the same
User :   ok
Doctor :  
But your lesion below the armpit right?
User :   they are on both arms , below my arm near to ellbows
Doctor :   Ok

Doctor :  
Usually they grow along the nerves
User :   and also on back of my body near to waist
Doctor :  
and it is the same in your case
Doctor :  
But for the sake of confirmation, I would suggest you to consult a General Surgeon/Oncologist
Doctor :  
Both are fine
User :   first i have a doubt of cancer ? but my doctor just looked at my tumors and said in 10-15 secs that they are neuro fibramatisis
Doctor :   No need to worry in such terms

Doctor :  
Cancer lesions does not cause pain at all
Doctor :  
they grow in size at an alarming rate
User :   i too dont have any pain
Doctor :  
Ok
Doctor :  
I know, but the size
Doctor :  
they just keep increasing in size
User :   i have these tumors growing almost for past 6-7 years
Doctor :   in size or in nos.

User :   but vry slow grow
Doctor :  
Ok
User :   number is i observed 6 to 7
Doctor :  
Anyway need not jump to cancer as conclusion
Doctor :  
even I cannot do it
Doctor :  
I would suggest you to consult the specialist
Doctor :  
as it would be a relief both medically and psychologically
User :   ok but can you tell the difference between NF tumors and cancer tumors
Doctor :   cancer, what cancer

Doctor :  
it cannot be said
Doctor :  
but nf i will explain
Doctor :   hey often appear as small, fleshy, pea-sized nodules within the skin

Doctor :   it is usually benign
User :   how fast any cancer tumors grow in their size
Doctor :   In rare instances, a neurofibroma mutates into a malignant tumor(cancer)

Doctor :   benign tumours do not grow in size

Doctor :  
they remain the same after sometime
Doctor :  
but cancers growth will be there
Doctor :  
that is the key difference
Doctor :  
It is not possible to give the measurements as such
Doctor :  
as each case and each tissue differs
User :   i am having these tumors for past some years and size is small and i cant observe the growth in their size
Doctor :  
Yes, that is a positive sign
Doctor :  
meaning not to worry of cancer
Doctor :  
just get it reassured
Doctor :  
that is what is required
User :   but small amount of growth is there in the last 6 or so years
Doctor :  
that will be there
Doctor :  
any tumour has to grow in size
User :   cancer tumors will be there for 6 years visible to human ?
Doctor :  
the rate differs
Doctor :  
and the extent of growth differs
Doctor :  
If it was cancer, you would have faced other symptoms now
Doctor :  
like fatigue, no hunger, loss of weight
User :   what are other sympotms
User :   ?
Doctor :  
?
Doctor :  
I have told them
User :   i havent lossed any weight
Doctor :  
those r the symptoms
User :   ok
Doctor :  
that is why cancer is unlikely
Doctor :  
does that convince you?
Doctor :  
to some extent atleast?
User :   just understand me my state
User :   that is i am asking
Doctor :   I can Sasi

Doctor :  
I know the apprehensions you have got
Doctor :  
but that is not at all required
Doctor :  
enjoy your days
Doctor :  
get it examined
Doctor :  
thats it
User :   and one more
Doctor :  
No point in thinking all the ifs and buts and loosing time
Doctor :  
and health especially mental health
Doctor :  
I hope you understand
Doctor :  
Yes, go on with it
User :   if it was NF1 or NF2 will i not be good to give birth to good children , because recently my wife had a baby loss in 3rd month of pregnancy because of cystic hygroma for the baby
Doctor :   It does not have such relation

Doctor :  
again misconception, I can say
User :   but all my thougts started from my baby loss in pregnancy and then chromosomal abnormalities and then cancer and then my tumors
Doctor :   Yes, the link you can get

Doctor :  
but not necessary to worry
Doctor :  
Should relax and leave it to the doctor
Doctor :  
If you google the things, it is confusing
Doctor :  
and will consume a lifetime to realise the things in it
User :   ya confusing and also sleepless nights but to know i have to
Doctor :  
So I suggest you to stop doing that
Doctor :  
I know the times you have gone through
Doctor :  
Believe the doctor
Doctor :  
if you have doubt, then come to us or get a second opinion from another doc
Doctor :  
thats it
Doctor :  
If you again doubt the second doctor, it is a psychological problem with obsession
Doctor :  
which has to be treated first
User :   ok according to you will there will be any relation between my baby loss and to my NF if i have it
Doctor :   No, I repeat

User :   ok
Doctor :  
Fine
Doctor :  
Now have a big smile
Doctor :  
and cheer up
Doctor :  
Life is still there
Doctor :  
and do not waste it unnecessarily
User :   i am actualy a s/w engg
User :   my wife also
Doctor :   I know
Doctor :  
Thats why I am telling these things
Doctor :  
Haha
Doctor :  
bcos you are experts in searching the content
Doctor :  
and getting confused
User :   Haha
Doctor :  
Sorry, I tell it both seriously and humorously
User :   because we sit before computer for 20 hours a day
Doctor :   Yes, I know

Doctor :  
That has an impact on your mental health also
Doctor :  
and it projects in all dimensions
Doctor :  
But again you can control it with Good will
Doctor :  
and be a normal
User :   ok
Doctor :  
I have heard people saying " I am a so called s/w/e"
Doctor :  
with those words I can guess their irony and pain
Doctor :  
I hope that I am not very wrong
User :   ok leave it
User :   if i have NF how good i am to give birth to a good child
Doctor :   As good as a healthy male

Doctor :  
Now again you are repeating it
Doctor :  
Now atleast you should be convinced
User :   what problems my baby will have if he inherits that
Doctor :  
the same lesions in his body
Doctor :  
it runs in families
Doctor :  
his/her body, sorry
User :   but not harmful
Doctor :   No

Doctor :  
Now repeat that you are not having problem in giving birth to a baby
Doctor :  
I would like to see that msg from you
User :   I am not having problem in giving birth to my baby
Doctor :  
Good
Doctor :  
Positive and go with it
User :   one more thing i havent told this to anyone
User :   to my wife also
Doctor :  
Ok
User :   can i tell or wait till more investigations done for me from my doctor
User :   ?
Doctor :  
tell
Doctor :  
if it is relevant we shall carry it forward
User :   my only problem if it was a dangerous if i tell they suddenly understand them
User :   i dont want to hurt my wife because of me
Doctor :   Ok
Doctor :  
Tell it
Doctor :  
No issues
User :   Ok
User :   i get headaches daily at somepoint of time
User :   is that because of this nf1 OR NF2?
Doctor :   Not actually

Doctor :  
due to this
Doctor :  
it does not have a relation
Doctor :  
if you do not have any growth in your head
User :   means?
Doctor :   Meaning the growth like the one you have in your hands

Doctor :  
Are you there?
User :   ok
User :   if they were present in my head is it critical
Doctor :   No

User :   or can be removed?
Doctor :  
it is the same at a different location
Doctor :  
not related to brain
Doctor :  
Dont worry
User :   ok these will not grow in brain aa?
Doctor :   No

User :   ok
Doctor :   Is there any thing else I can help you with?



User :   one more last question
Doctor :  
Ok
User :   without hearing loss , and with headache can i have NF2
Doctor :   That is a rare possibility

User :   ok
User :   thanks doctor
Doctor :   and can be ruled out

Doctor :   Please fill the feedback form say done when done.

Doctor :   Do get the second opinion for Gen Surgeon
User :   ok
Doctor :  
from Gen Surgeon
User :   sre
User :   sure
User :   bye
Doctor :   Have you filled the feedback form?

User :   ya
Doctor :   Thanks for consulting HealthcareMagic. Bye for now. Please refer your friends to our service.
Question is related to
Diseases and Conditions
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